Caregiver Interview Study
The Caregiver Interview Study is now closed for recruitment. We learned so much from our participants (thank you!) and are now excitedly working on analyzing our data. Stay tuned for our results!
Why did CARE conduct this study?
We know that individuals with ASD are often sensitive to things in their environment, like noises, lights, or textures. We also know that caregivers of individuals of ASD sometimes express concerns about their children’s transition to adulthood. However, not much is known about how these two topics intersect! Do the sensory sensitivities of individuals with ASD impact their transition to adulthood? How so? Do they not have an impact? What other factors influence this transition in relation to sensory sensitivities? These are some of the questions were trying to answer!
Who participated?
The interview study sought out caregivers of young adults with ASD! More specifically, we enrolled caregivers who:
- Had a child with an ASD diagnosis
- Had a child who was between 16 and 25 years old
- Had a child who had sensory sensitivities and interests
- Had a child who lived at home
- Were comfortable speaking English
What did the study involve?
- 2-3 hours total
- Several online surveys
- An online interview
More specifically, if participants were eligible for our study, we scheduled a brief (about 30 minutes) video call to enroll participants into our study where they were able to ask questions and tell us how we could or could not use their data. We then sent participants several online surveys to complete (about 1-1.5 hours). Once those online surveys were completed, we scheduled a Zoom call where we asked participants questions about how their child’s sensory sensitivities impacted (or didn’t impact!) their transition to adulthood.
Interested in our results?
If you participated in this study, we will send you our results. However, if you did not participate and are curious about what we found, please contact ATLAS’ Project Coordinator, Rachel Hantman, at atlas@bu.edu, 617-358-4941 (call), or 617-992-6475 (call/text). We are more than happy to share our results with you!
Questions?
If you have any questions about ATLAS, please do not hesitate to reach out to ATLAS’ Project Coordinator, Rachel Hantman, at atlas@bu.edu, 617-358-4941 (call), or 617-992-6475 (call/text)!
This project was supported by the Department of Defense.