News
Highlights of the XIIIth International Symposium on Amyloidosis
University Medical Center Groningen, The Netherlands May 6-10, 2012 The XIIIth International Symposium on Amyloidosis took place in Groningen, The Netherlands from May 6-10, 2012, hosted by Dr. Bouke P. C. Hazenberg and his colleagues. The Symposium was entitled From Misfolded Proteins to Well-Designed Treatment and focused on research on amyloid fibril formation, diagnostic techniques, […]
2012 Boston Medical Center Gala: Amyloidosis Feature
“There is an utter lack of medical arrogance,” states Mark Kimble, who is a patient of the Amyloid Treatment and Research Program and a stem cell transplant recipient. “The people at [BMC] are compassionate, and work brilliantly as a team. It is a very healing environment.” Mark Kimble’s testimony – as well as interviews with […]
Grandparents Day Event
When: Saturday, May 5th (12:00-3:00pm) Where: Denver School of Science and Technology – 2000 Valencia Street, Denver, CO 80238 As part of her high school senior project, Sri Ali will raise funds and awareness for amyloidosis. Sri, who is a senior at the Denver School of Science and Technology, lost three of her grandparents in […]
Congressional Testimony on Amyloidosis
Thursday, March 29th, 2012 – Today Ann Peel will testify before the United States House Appropriations Committee on Labor HHS. Her testimony tells of her experience with amyloid disease, urges the Committee to identify amyloidosis as an important concern, and encourages research towards finding a cure. She also urges the CDC and NIH to educate the American […]
Dr. Seldin and two patients featured in an NPR interview
Dr. Seldin and two of our patients were featured in an NPR interview last week. You can listen to an audio of this broadcast by clicking here: Rare Disease Feature (WAER 88.3 FM) The segment aired on February 29th and March 1st in Syracuse, New York (WAER 88.3 FM) on NPR’s flagship news program “All Things […]
Upcoming Event: A Cappella Concert at UNH
What: A cappella concert to raise funds for Amyloid Research When: Saturday, March 24 – 5:00 PM Where: Murkland Auditorium, University of New Hampshire (Durham, NH) Amyloidosis Benefit Concert Flyer Directions to Murkland Auditorium On Saturday, March 24th at 5:00 PM, the New Hampshire Notables will perform in a benefit concert to raise funds for […]
Len Shalansky Memorial Exhibition
On November, 13 through November 17, an exhibition and sale was held at Temple Beth El in Providence, Rhode Island, in honor of the artist Len Shalansky. The event was organized by Len’s wife, Ruby. Len was a talented commercial and fine artist who died of systemic amyloidosis in 2011. His work portrayed an understanding of […]
April 2011, New Publications
Four important new publications from our Program investigators: A strong collaboration has been developed between our Program and the Heart Transplant Program at the Massachusetts General Hospital directed by Dr. Marc Semigran. Since patients with AL amyloidosis and severe heart failure often have a very short survival and poor tolerance to medications, we have worked […]