News
Dr. Vaishali Sanchorawala – High Dose Chemo and SCT Results in Long-Term Survival for Many AL Amyloidosis Patients
Featured on Boston University School of Medicine research news report October 8, 2015. For more see http://www.bumc.bu.edu/busm/2015/10/08/high-dose-chemo-and-sct-results-in-long-term-survival-for-many-al-amyloidosis-patients/
Nassau Wings Motorcycle Club Conclude Their 15th Annual Fundraising Event
On Saturday, October 10th, Jaime Cruz and Eddie Santiago, representatives of the Nassau Wings Motorcycle Club, rode from Long Island to Boston to deliver the proceeds of their 15th annual fundraising event for the benefit of amyloidosis research. The event has been renamed Freddy’s Run (formerly known as Pop’s Run) in honor of Freddy Peteani, […]
Tribute to Dr. David Seldin
David C. Seldin: Brilliant Scientist, Compassionate Clinician and Gifted Teacher With sadness we write to let you know that we have lost a distinguished professor, brilliant investigator, beloved physician, and beneficent leader. David C. Seldin, MD, PhD, director of the Amyloidosis Center at Boston University School of Medicine, died on June 27, of prostate cancer. He was […]
Bill Cunningham’s Race and Raffle to Beat Amyloid
Come celebrate Bill’s birthday at the 8th Annual Bill Cunningham Race and Raffle to Beat Amyloid Saturday, March 7th at Cannon Mountain Ski Race Registration online at https://development.bmc.org/billsrace Get friends & family to sponsor you ~ a full day ticket, t-shirt, glass, and invitation to post-race reception for top 15 fundraisers are included if you […]
Dr. Connors, new grant from the E. Rhodes and Leona B. Carpenter Foundation
July 2, 2014 Dr. Lawreen Connors, director of the Gerry Amyloid Research Laboratory, thanks the E. Rhodes and Leona B. Carpenter Foundation for their support of her proposal to study “Blood Profiling for Biomakers in Age-related ‘Senile’ Systemic Amyloidosis.”
Welcome Dr. Katie Bever and Allison Rosenberg, RN, DNP
We welcome Dr. Katherine (Katie) Bever and Ms. Allison Rosenberg. Katie (on the left) is a board-eligible internist joining us for the year as the “amyloid doctor”, replacing Dr. Julie Fu, who has left us to pursue further training in hematology-oncology; we wish her well! Dr. Bever is also interested in going into hematology-oncology, after […]
Anne Alllaire Art Exhibit
Talented artist Anne Gable Allaire, a 17 year AL amyloidosis survivor, has an upcoming one woman show at the Maine State Capitol in Augusta on view now through June 9, 2014. Anne is a Master Pastelist and member of the Pastel Society of America. Her work can be previewed on their website or seen at […]
XIVth International Symposium
Indianapolis, Indiana, USA, April 28 – May 1, 2014 Link
7th Annual Bill Cunningham Race to Beat Amyloid
7th Annual Bill Cunningham Race to Beat Amyloid Ski Race & Raffle at Cannon Mountain on Saturday, March 1, 2014 Info & Registration at www.BillsRace.com Flier__Bill’s_Race_Raffle_2014
Repurposing Diflunisal for Familial Amyloid Polyneuropathy
December 25, 2013 An international consortium of investigators led by Amyloidosis Center Clinical Director Dr. John Berk have completed a randomized, placebo-controlled, phase III clinical trial of the non-steroidal anti-inflammatory drug diflunisal for patients with ATTR polyneuropathy, published today in the Journal of the American Medical Association. 130 participating patients received either diflunisal (250 mg […]