News

Hematologist on our multidisciplinary clinical team, Dr. Mark Sloan, @jmarksloan, was named as an Evans Outstanding Clinician

We are proud to announce that the hematologist on our multidisciplinary clinical team, Dr. Mark Sloan, @jmarksloan, was named as an Evans Outstanding Clinician. He is being recognized as for clinical skills, attributes and professionalism that define excellence. This award is intended to acknowledge the value of clinical medicine and honor clinical role models among the […]

2019 House and Senate language on Amyloidosis

August 24, 2018 Last night the Senate passed the fiscal year 2019 Labor HHS bill.  This is the first time the bill has passed the Senate floor in a decade.  This gives more emphasis to language included in the Senate and House reports on Amyloidosis and the hope for completing a House Senate conference and […]

Proud to Present Dr. John Berk’s Research in hereditary ATTR Amyloidosis in New England Journal of Medicine

We are proud to announce 2 publications in the New England Journal of Medicine highlighting Dr. John Berk’s research in hereditary ATTR amyloidosis. You can find both articles linked below. Inotersen Treatment for Patients with Hereditary Transthyretin Amyloidosis NEJM | PubMed Patisiran, an RNAi Therapeutic, for Hereditary Transthyretin Amyloidosis NEJM | PubMed Congratulations to Dr. […]

3rd Annual Fit To Be Tied Race Wrap-Up

We would like to give a big shout-out to everyone that came out to the 3rd Annual Fit to Be Tied in support for Amyloidosis, which took place on May 20th, 2018 in Onondaga Lake Park in Liverpool, NY.  We would also like to sincerely thank Ms. Floris Palmer and everyone who makes Fit to […]