Charity Raffle to Benefit Amyloidosis Research
Grand Prize: Free week vacation for up to six people in Sedona, Arizona at the luxurious Arroyo Roble Villa Resort (Week of October 13 – October 20, 2013). Up to $500 for airfare included. Tickets: $5.00 each / $20 for five tickets This fundraiser is sponsored by the Nassau Wings Motorcycle Club as part of […]
Fundraising Event: Kentucky Derby Festival Marathon
What: Kentucky Derby Festival Marathon When: Saturday, April 27th, 2013 Where: Louisville, KY Julie Hansell will be running the Kentucky Derby Festival Marathon on Saturday, April 27 to raise funds in honor of her father, Jim Hansell, who was diagnosed with Amyloidosis in January 2013. Donations can be made to Julie’s fundraising web page: http://www.youcaring.com/other/26-2-Miles-for-Amyloidosis/42444
Upcoming Event: Bill Cunningham Memorial Ski Race & Raffle
What: Bill Cunningham Memorial Ski Race & Raffle When: Saturday, March 2, 2013 Where: Cannon Mountain (Franconia, NH) Bill Cunningham, former instructor, director, assistant & technical director of Cannon Mountain, died on May 22, 2007 of AL amyloidosis. For Cunningham, the illness was misdiagnosed for several years, until it was too late. The event is […]
Dr. Martha Skinner appointed Professor Emerita at Boston University School of Medicine
Dr. David Seldin, Director of the Boston University Amyloidosis Center, is pleased to announce that Dr. Martha Skinner has been appointed Professor Emerita at Boston University School of Medicine in recognition of her lifetime contributions to biomedical research, patient care, and education in the field of amyloidosis. In this capacity, Dr. Skinner will continue to […]
5k Race to Raise Funds and Awareness for Amyloidosis Research
Savina, Sudha, and Ajay Kumar are raising funds for Amyloidosis research in support of their mother, Renu Kumar, who was diagnosed with Amyloidosis in February 2011. In May 2011, Renu underwent stem cell transplantation at the Boston University Amyloid Treatment and Research Program under the care of Dr. Vaishali Sanchorawala. Currently she is reported to have […]
A Zebra Loses Its Stripes: Update on the Diagnosis and Treatment of Systemic Amyloidosis
What: Continuing Medical Education (CME) Event – “A Zebra Loses Its Stripes: Update on the Diagnosis and Treatment of Systemic Amyloidosis” Where: Boston University School of Medicine Hiebert Lounge, 14th Floor 72 East Concord Street, Boston, MA This will be a CME symposium designed to provide an update on the rare systemic amyloid […]
5-mile Dog Day Race to Raise Funds for Amyloidosis
Jaime and Ed McLaughlin are running the 5-mile Dog Day Race in Long Beach Island, NJ on August 19th in support of the Amyloid Treatment & Research Program. Jaime’s Uncle, Vincent Preteroti, passed away at a young age and very suddenly from amyloidosis. The McLaughlin’s goal is to increase awareness and to “run for a purpose” […]
Upcoming Event: 11th Annual Pop’s Run Charity Motorcycle Ride
When: Sunday, August 26, 2012 (9:00AM – 10:30AM Sign-Up) Where: Yamaha-Suzuki-Victory of Mineola 336 Jericho Turnpike Mineola, NY 11501 Phone: (516) 248-5555 Cost: $20.00 per participant Event Website: http://www.popsrun.org/ Press Release: http://www.popsrun.org/2012_Press_Release.pdf Flyer: http://www.popsrun.org/2012_Pop%27s_Run_Flyer.pdf The Nassau Wings Motorcycle Club and the Amyloidosis Support Groups will host the Eleventh Annual “Pop’s Run” charity motorcycle ride […]
Highlights of the XIIIth International Symposium on Amyloidosis
University Medical Center Groningen, The Netherlands May 6-10, 2012 The XIIIth International Symposium on Amyloidosis took place in Groningen, The Netherlands from May 6-10, 2012, hosted by Dr. Bouke P. C. Hazenberg and his colleagues. The Symposium was entitled From Misfolded Proteins to Well-Designed Treatment and focused on research on amyloid fibril formation, diagnostic techniques, […]
2012 Boston Medical Center Gala: Amyloidosis Feature
“There is an utter lack of medical arrogance,” states Mark Kimble, who is a patient of the Amyloid Treatment and Research Program and a stem cell transplant recipient. “The people at [BMC] are compassionate, and work brilliantly as a team. It is a very healing environment.” Mark Kimble’s testimony – as well as interviews with […]