Amyloidosis Center News
Amyloidosis Support Group Meeting
Amyloidosis Support Group Meeting
2020 Amyloidosis House LHHS Report
There was a recent large increase of funding for NIH, The House Appropriations Committee has also reported on a bill that contains very positive language on Amyloidosis. 2020 Amyloidosis House LHHS Report Language HOUSE APPROPRIATIONS COMMITTEE FISCAL YEAR 2020 LABOR, HEALTH AND HUMAN SERVICES, AND EDUCATION H.R. 2740, H Report 116-62 May 15, 2019 REPORT LANGUAGE TITLE... More
FDA Approves New Treatments
https://www.fda.gov/news-events/press-announcements/fda-approves-new-treatments-heart-disease-caused-serious-rare-disease-transthyretin-mediated "This is an epic moment for the treatment of ATTR amyloidosis. We are very excited and hopeful for the expanding landscape of ATTR amyloidosis by the approval of tafamidis, the first drug approved for ATTR cardiomyopathy. Tafamidis will have a tremendous impact on patients with both hereditary and wildtype ATTR... More
Amyloidosis Center Research
http://sites.bu.edu/gareth-morgan/
Community gathers to support Springfield Police lieutenant battling rare disorder
https://www.westernmassnews.com/news/community-gathers-to-support-springfield-police-lieutenant-battling-rare-disorder/article_2f05e8a0-58d1-11e9-b180-f751fa2ba11b.html?utm_medium=social&utm_source=email&utm_campaign=user-share
“Fit To Be Tied” a Palmer Family Fundraiser to support AL Amyloidosis research for this insidious disease
May 17, 2019: 2nd Utah Amyloidosis Symposium
Save the date for May 17, 2019 at 8:00am - 4:00pm, Spencer F. & Cleone P. Eccles Health Sciences Education Building University of Utah, Salt Lake City. Dr. Vaishali Sanchorawala is one of the presenters. https://medicine.utah.edu/amyloidosis-symposium/v … #amyloidosis BU Amyloidosis Center
May 11, 2019:From Neuropathy to Cardiomyopathy: How to Never Miss Amyloidosis.
If you have not heard already, on May 11, 2019, BU Amyloidosis Center physicians will be presenting at Emory University School of Medicine symposium, From Neuropathy to Cardiomyopathy: How to Never Miss Amyloidosis. Target Audience: This symposium is appropriate for primary care providers, neurologists, cardiologists and hematology/oncology. BU Amyloidosis Center
Did you know today is Rare Disease Day, February 28, 2019 ?
What is considered a rare disease? In Europe a disease is only consider RARE disease when it affects less than 1 in 2000 people. But in America we consider a disease RARE when 200,000 and fewer are affected. Here’s a fact that most wouldn’t know that #Amyloidosis is a RARE disease, More
Winter 2019: Amyloidosis Report
In this Issue The Wildflower Foundation Gerry Amyloid Research Laboratory Update Update on ATTR Amyloidosis SCAN-MP Project Dr. Carl O’Hara - In Retirement Welcome Dr. Gareth Morgan Genetic Counseling View Newsletter