Category: Uncategorized

Ann Peel Urges the US Congress to Support Amyloidosis Research

Ann Peel gave her testimony on amyloidosis to the House and Senate Appropriations Committees on April 15th.  The testimony seeks support for Amyloidosis programs from Congress in the fiscal year 2017 Labor, Health Services and Education Appropriations bill.  Please see her complete statement below. We are very grateful to Ann and Terry Peel for their dedication to bringing […]

Fit To Be Tied: Race for Amyloidosis Awareness

Bob was a psychologist for over 30 years, wearing crazy ties to work every day. So we thought it was only fitting to call his race: “Fit To Be Tied“ Come out and run in memory of Bob Palmer and in support of Amyloidosis research and awareness on May 22nd in Onondaga Lake Park in […]

Calli and Saige Beatman’s Mini Golf Charity “Fun” Raiser

Calli and Saige Beatman Fundraiser in memory of “grandma”. Calli and Saige lost their grandmother to amyloidosis in 2014. Saige, a 6th grader at McGee Middle School in Berlin, CT won an essay contest advocating for charity. She chose the Amyloidosis Center and is working with her older sister Calli, who is doing the fundraiser. […]

Connors and Colleagues Publish Findings in ATTRwt Amyloidosis Cohort

Data on the largest cohort of ATTRwt amyloidosis patients yet reported (n=121), referred to our institution over a 20-year observational period, were recently reported in the prestigious heart journal, Circulation.  The publication, entitled “Heart failure due to age-related cardiac amyloid disease associated with wild-type transthyretin:  a prospective, observational cohort study,” was authored by Dr. Lawreen […]

Dr. Vaishali Sanchorawala – Recent Invited Presentations

“A Zebra Loses Its Stripes, Diagnosis and Treatment of Systemic Amyloidosis” June 2015 – Grand Round talk given at City of Hope Medical Center in Duarte, CA  http://youtu.be/R3J3F8Pvzuo “Untangling Amyloidosis” December 2015 – Oral presentation at American Society of Hematology in Orlando, FL http://livestream.com/accounts/10952998/events/4502460/player?width=640&height=360&autoPlay=true&mute=false%22  

The Wildflower Foundation Continues Support For AL Amyloidosis Research

The Wildflower Foundation, Inc. (Miami, FL) has renewed their funding in support of the study entitled ““Immunoglobulin Light Chain Amyloid Fibril Formation: Structural Determinants as a Platform for Drug Development.”  Lawreen H. Connors, PhD, is the principal investigator of the study.  Through the generous support from The Wildflower Foundation, Dr. Connors and team have made significant […]

Welcome Dr. Katie Bever and Allison Rosenberg, RN, DNP

We welcome Dr. Katherine (Katie) Bever and Ms. Allison Rosenberg. Katie (on the left) is a board-eligible internist joining us for the year as the “amyloid doctor”, replacing Dr. Julie Fu, who has left us to pursue further training in hematology-oncology; we wish her well! Dr. Bever is also interested in going into hematology-oncology, after […]

Anne Alllaire Art Exhibit

Talented artist Anne Gable Allaire, a 17 year AL amyloidosis survivor, has an upcoming one woman show at the Maine State Capitol in Augusta on view now through June 9, 2014. Anne is a Master Pastelist and member of the Pastel Society of America. Her work can be previewed on their website or seen  at […]