• Sara Rimer

    Senior Contributing Editor

    Sara Rimer

    Sara Rimer spent 26 years as a reporter at the New York Times, where she wrote about education, the death penalty, immigration, and aging in America, and was the New England bureau chief. The Times nominated her for the Pulitzer Prize. Her coverage of the death penalty was cited by the Supreme Court in its 2002 ruling outlawing the execution of developmentally disabled individuals. Profile

Comments & Discussion

Boston University moderates comments to facilitate an informed, substantive, civil conversation. Abusive, profane, self-promotional, misleading, incoherent or off-topic comments will be rejected. Moderators are staffed during regular business hours (EST) and can only accept comments written in English.

There are 2 comments on Trailblazing MED Alum to Lead Vertex Pharmaceuticals

  1. My name is Lina a mother of a young Jordanian man called Faris, who has been suffering from cystic fibrosis since birth.

    Since his birth, our journey has been initiated with treatment that has consumed all our emotional, psychological, physical, and econmic energies.

    There are no specialized centers for the treatment of cystic fibrosis in jordan like the rest of the developed countries, at the beginning of our long journey in fighting against cf disease we had to travel to the state of Israel because of the presence of a specialized center for cystic fibrosis in Tel Aviv.
    This situation continued for long period of time but then, due to the financial situation for us and as it is known that treatment abroad is very expensive in itself and the treatment of cystic fibrosis, which is one of the most expensive diseases in the world we had to stop treating my son in Tel Aviv.

    Faris is a very ambitious young man age 23 who enjoys an optimistic vision of a future free of pains and enjoys a sense of humor despite his physical pains and psychological injuries due to his illness, but now because of his psychological and physical condition he is closing on himself and moving away from his friends and peers due to a lot of medications and treatments he had to be admited in the hospital more.

    But today after we heard the beautiful news we were waiting for hopes and disappointments with tears and pains and dreams news our whole family were waiting for the discovery of the medicine Trikafta, after we were happy with this great news which we hoped for many years we were shocked of surprised that This treatment is one of the most expensive treatments in the world and so it is not available in Jordan.

    That’s why I appeal to anyone who reads this message from a mother who seeks to heal her son and keep him alive in good health.

    Please help my son get this medicine or help us communicate with any association, company or person who can provide us with this medicine to preserve my son’s life and enjoys a sense of humor despite his physical pains and psychological injuries due to his illness, but now because of his psychological and physical condition he is closing on himself and moving away from his friends and peers due to a lot of medications and treatments he had to be admited in the hospital more.

    But today after we heard the beautiful news after waiting 23 years of hopes and disappointments with tears and pains and dreams news our whole family were waiting for the discovery of the medicine Trikafta, after we were happy with this great  news which we hoped  for many years we were shocked of  surprised that This treatment is one of the most expensive treatments in the world and so it is not available in Jordan.

    That’s why I appeal to anyone who reads this message from a mother who seeks to heal her son and keep him alive in good health.

    Please help my son get this medicine or help us to find a way of communicate with any association, company or person who can provide us with this medicine to preserve my son’s life.

    I already lost two sons for CF dont let me lose again please please help him to get this medicine Trikafta for keeping him alive.

Post a comment.

Your email address will not be published. Required fields are marked *