Living With Aphasia

A new series in 5 chapters, featuring experts and patients from the Aphasia Resource Center, offers insight into the experience of Living with Aphasia.

This series is intended as an introduction to aphasia. The information serves to provide general guidelines and is not a diagnosis.  Since cause, type, and severity of aphasia vary, it is important to obtain specific information from your neurologist, speech-language pathologist, and other care providers about the unique symptoms and management options for each person diagnosed with aphasia.

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Chapter 1: The Diagnosis

Chapter 1 introduces the topic of stroke-induced aphasia, describing the symptoms experienced during the first few hours and days following the onset of the stroke.

Chapter 2: The First Few Days

Chapter 2 introduces the topic of adjusting to the impact and challenges of aphasia during the early stage of recovery.

Chapter 3: The Recovery

Chapter 3 delves into the journey of recovery, including occupational, physical, and speech therapy. The importance of the team approach and family support are emphasized.

Chapter 4: The Psychological Impact

Chapter 4 explores the emotional and psychological impact of aphasia and provides suggestions on resources to address it.

Chapter 5: The Care Partners Perspective

Chapter 5 discusses aphasia’s effect on care partners and offers reflections on improving the lived experience for all impacted by the condition.

Reviews for Living With Aphasia

These are absolutely outstanding. Fantastic work on bringing the human, deeply personal experience to lived aphasia. Thanks for all your incredible work and for sharing this invaluable resource. — Thomas W. Sather, PhD, CCC-SLP, ASHA Fellow, Associate Professor University of Wisconsin Eau Claire

Incredible, amazing, inspiring! — Kelly Hansen, MS, CCC-SLP, BCS-S Boston University Sargent College

I have been so incredibly moved by these stories from members of the Aphasia Community Group.  Check it out! — Jack Dennerlein, PhD, Dean, Boston University Sargent College

These videos are a great gift to the community, so beautiful and well-done. — Joanne P. Lasker, PhD, CCC-SLP, Associate Professor Emerson College Department of Communication Sciences and Disorders

Much of what your wonderful film will do is let me/others know that I am not alone regardless of background. — Donald Cunnigen, PhD, Professor Emeritus of Sociology, University of Rhode Island

Really exceptional, beautiful work — Ellen Driscoll, multimedia artist, creator of Mum’s the Word” Aphasia Art Installation. Awards include Guggenheim Fellowship, National Endowment For the Arts

What you have created here in a very intentional and empathetic way is the story of learning, coping, and challenges associated with aphasia.  We who have aphasia thank you for telling this story in a very uncomplicated manner.  Many thanks. — Tim Sweeney

Making a Gift

There are two ways to contribute to the Aphasia Resource Center:

  1. Make a gift online
  2. Check donations– please make payable to Trustees of Boston University/Aphasia Resource Center (ARC) and send to:

Boston University Development
PO Box 22605
New York, NY 10087-2605