ACT Network Update
ACT Now: November/December 2018 ACT Network Update
Dear Colleagues,
Warmly,
Steve Reis (sreis@pitt.edu)
Gary Firestein (gfirestein@ucsd.edu)
Lee Nadler (lee_nadler@dfci.harvard.edu)
Bob Toto (robert.toto@utsouthwestern.edu)
About the ACT Network
- 32 sites connected to the ACT Network.
- 16 sites staging for connection to ACT.
- 100 million estimated total patients represented in first 32 ACT sites.
Connected to ACT: | Connected to ACT: | Staging for ACT: |
Boston University Children’s National Columbia University* Duke University Emory Univ./Morehouse Univ. Harvard University* Indiana University Johns Hopkins University Mayo Clinic Medical Univ. of South Carolina New York University Northwestern University* Oregon Health & Science Univ.* Stanford University Univ. of Alabama at Birmingham* Univ. of Ark. for Medical Sciences* |
University of California, Davis* University of California, Irvine* University of California, Los Angeles University of California, San Diego University of California, San Francisco U of Cincinnati/Cincinnati Children’s U of Colo/Children’s Hosp. Colorado* University of Florida* University of Kentucky University of Minnesota UNC-Chapel Hill University of Pittsburgh* UT Health San Antonio UT Southwestern* Vanderbilt University Medical Center Washington Univ. in St. Louis* |
Medical College of Wisc. Ohio State University Penn State University at Buffalo* University of Illinois-Chicago University of Kansas* Univ. of Massachusetts University of Miami University of New Mexico Univ. of Southern California UT Houston University of Utah University of Washington* U of Wisconsin-Madison* Virginia Commonwealth Weill Cornell Medicine |
*sites currently represented in ACT workgroups
ACT Workgroup Updates
Technology
With the majority of production sites now fully functional on SHRINE 1.25.4, the technology work group is focusing on rollout education and strategies for the i2b2 plugin technology that will assist in participant re-identification inn 2019.
Data Harmonization
The next version of the ACT ontology, v2.0, is currently in the ACT test network. A production rollout is expected in early 2019. More information will follow in the next newsletter and through the technology email listserv.
Governance
Final revisions to the governance document are nearing completion, and include updated ACT functions, network operations, and considerations for the i2b2 plugins for participant re-identification. Additionally, the work group is focusing on appropriate guidance and paths forward for possible end user access by affiliate institutions.
Dissemination/Evaluation
The Evaluation team has begun qualitative interviews with data stewards and end users at active ACT sites to learn more about local experiences and identify opportunities for improving ACT. The Dissemination team is continuing to support sites from waves 1, 2 and 3 as they launch ACT to local end users.