• Rich Barlow

    Senior Writer

    Rich Barlow

    Rich Barlow is a senior writer at BU Today and Bostonia magazine. Perhaps the only native of Trenton, N.J., who will volunteer his birthplace without police interrogation, he graduated from Dartmouth College, spent 20 years as a small-town newspaper reporter, and is a former Boston Globe religion columnist, book reviewer, and occasional op-ed contributor. Profile

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There are 3 comments on BU-Led Research Maps the Route to Dementia

  1. As a former mid level athlete and proud owner of countless concussions, this issue is pretty terrifying. Are we at a point where we are just learning about the complications or are we close to identifying a way to slow or even stop the degeneration?

  2. Does your research include tauopathies? I was told my first husband who passed away in 1979 at age 45, was the first ever diagnosed with an inherited disorder called Chromosome 17 Disinhibition, Dementia, Parkinsonian, Amyotrophy Complex. The inheritance rate is 50% and it is caused by tau inclusions in the brain. You can find it all over the internet. I now have a terrible dilemma with my son who is 54 years old. In his mid 30’s he seemed to become disinhibited and depressed. I took him to the doctor who had discovered the disorder in his father’s family for an opinion. There was very little knowledge at that time but my son was thought to involved and we continued along that line as he became more disabled. However in December of 2008, one researh doctor had a test done in England showing my son did not as that time display tau inclusions so he was put out of the research. We have no contact with the rest of this large family since my son’s father and I had been divorced although we both went back when he became sick. An American doctor told me that while he could tell of some has Chromosome 17 DDPAC, he could not say that given a negative test for tau, the patient did not have this disorder. I wonder if we could be included in the research as my son is getting worse and I have no answers. Also I think it would be very helpful to the present studies that they know about all the work that has been done on tauopathies. God Bless your endeavors.

  3. In submitting the above information I forgot to mention that son also played high school football and took some terrible hits to the head. When he was fifteen he was knocked unconscious in a game for about five minutes while a doctor tended to him. I had to work that day and since he didn’t tell me I didn’t find out until a week later during which time he continued football practice. I know realize there are two possibilities for his present dilemma.

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