Resources
Here are some resources we recommend, in the Boston area and beyond:
Boston Area Support Groups and Resources:
Aphasia Community Group at Boston University’s Sargent College
http://www.bu.edu/aphasiacenter/programs/aphasia-community-group/
Aphasia Resource Center
Boston University, Sargent College
635 Commonwealth Avenue
Boston, MA 02115
Jerome Kaplan
Websites:
American Stroke Association
http://www.strokeassociation.org
The Schwartz Center for Compassionate Health, our funder for this project and a big supporter of our work,promotes compassionate healthcare so that patients and their professional caregivers relate to one another in a way that provides hope to the patient, support to caregivers and sustenance to the healing process.
http://www.theschwartzcenter.org/
This is the website for a UK aphasia charity, North East Aphasia Trust. There is a lot of helpful information and personal stories from people with aphasia on the site.
Articles:
Additional References
Hallé MC, Duhamel F, Le Dorze G. The daughter-mother relationship in the presence of aphasia: how daughters view changes over the first year poststroke. Qual Health Res. 2011 Apr;21(4):549-62. Epub 2010 Dec 1. PubMed PMID: 21123623.
Gracey F, Palmer S, Rous B, Psaila K, Shaw K, O’Dell J, Cope J, Mohamed S. “Feeling part of things”: Personal construction of self after brain injury. Neuropsychological Rehabilitation. 2008; 18(5/6): 627-650
Eriksson M, Svedlund M. ‘The intruder’: spouses’ narratives about life with a chronically ill partner. J Clinical Nursing. 2006 Mar; 15(3): 324-333.
Ellis-Hill CS, Horn S. Change in identity and self-concept: a new theoretical approach to recovery following a stroke. Clinical Rehabilitation. 2000 June; 14(3): 279-287
Brown D, Lyons E, Rose D. Recovering from brain injury: Finding the missing bits of the puzzle. Brain Injury. 2006 August; 20(9): 937-946.
Cameron J, Cheung A, Streiner D, Coyte P, Steward D. Stroke Survivor Depressive Symptoms Are Associated With Family Caregiver Depression During the First 2 Years Poststroke. Clinical Sciences. 2011 February: 302-306.
Muenchberger H, Kendall E, Neal R. Identity transition following traumatic brain injury: A dynamic process of contraction, expansion and tentative balance. Brain Injury. 2008 November; 22(12): 979-992.
Thomas S, Lincoln N. Predictors of Emotional Distress After Stroke. Stroke. 2008; 39: 1240-1245.
