{"id":319,"date":"2012-11-20T15:48:01","date_gmt":"2012-11-20T20:48:01","guid":{"rendered":"https:\/\/www.bu.edu\/slone\/?page_id=319"},"modified":"2020-04-13T14:19:00","modified_gmt":"2020-04-13T18:19:00","slug":"calls","status":"publish","type":"page","link":"https:\/\/www.bu.edu\/slone\/research\/studies\/calls\/","title":{"rendered":"The Child and Adolescent Learning and Living Study (CALLS)"},"content":{"rendered":"

\"CALLS\"<\/p>\n

Hemifacial microsomia (HFM) is characterized by asymmetric underdevelopment of the face. Although HFM is the second most common craniofacial malformation, there have been few studies of its impact on affected children. We have conducted the first large case-control (1997-2002)<\/a> and follow-up (2004-2009)<\/a> studies of children with and without HFM. In our follow-up study, we examined the potential influence of HFM on social-emotional and neuropsychological development. We found that children with HFM between 6-12 years of age were more likely to be shy and nervous, had more social challenges, and experienced greater academic difficulty based on results from neuropsychological screening measures.<\/p>\n

We have recently been funded to follow-up this cohort of children with and without HFM when they are between the ages of 11-17 years. In this study, the Child and Adolescent Learning and Living Study (CALLS), we hope to do a more detailed assessment to learn more about the children\u2019s social-emotional development, academic achievement, and neuropsychological functioning. We will directly assess their speech\/language patterns, memory, and learning, conduct complete hearing and vision screens, and take photographs so that we can better characterize the typical characteristics or phenotype of HFM. We will also gather information from the children\u2019s parents to learn more about their adaptive behavior, sleep patterns, social participation, and quality of life. In doing so, we expect to identify areas in which strategies are needed to reduce the impact of functional impairments in everyday life and to promote healthy outcomes.<\/p>\n

All children with and without HFM who participated in our first follow-up study are eligible to participate in CALLS. To gather the information we need from families who live across the United States and Canada, we will send trained staff to the cities and towns where study subjects live to conduct standardized testing of children and youth and to gather survey data from parents. Educational records and medical history questionnaires will be used to gather updated information about health and educational supports and services. All study participants will be compensated for their time and have the option to receive a summary of their child\u2019s testing results (e.g., to help with educational or vocational planning).<\/p>\n

For more information, please see our CALLS Study Overview<\/a><\/p>\n

Investigators and Study Staff<\/h3>
<\/p>\n

Investigators:<\/strong><\/p>\n

\"WerlerMartha Werler, Sc.D.<\/strong>
\nPrincipal Investigator
\nSenior Epidemiologist and Professor,
\nSchool of Public Health
\nSlone Epidemiology Center at Boston University

<\/p>\n

\"SpeltzMatthew Speltz, Ph.D.<\/strong>
\nCo-Principal Investigator
\nProfessor of Psychiatry and Behavioral Sciences
\nDivision Chief, Outpatient Psychiatric Services
\nUniversity of Washington School of Medicine
\nSeattle Children\u2019s Hospital Research Institute

<\/p>\n

\"CollettBrent Collett, Ph.D.<\/strong>
\nCo-Investigator
\nAssistant Professor,
\nDept. of Psychiatry and Behavioral Sciences
\nUniversity of Washington School of Medicine
\nSeattle Children\u2019s Hospital Research Institute<\/p>\n

Study Consultants:<\/b><\/p>\n

\"ChapmanKathy Chapman, Ph.D.<\/strong>
\nConsultant
\nProfessor and Director of Graduate Studies,
\nDept. of Communication Sciences and Disorders
\nUniversity of Utah

<\/p>\n

\"CloonanYona Cloonan, Ph.D<\/strong>.
\nConsultant
\nUniversity of Pittsburgh

<\/p>\n

\"HeikeCarrie Heike, M.D., M.S<\/strong>.
\nConsultant
\nAssistant Professor of Pediatrics
\nUniversity of Washington School of Medicine

<\/p>\n

\"MaryMary Khetani, Sc.D., O.T.R<\/strong>.
\nConsultant
\nAssistant Professor, Dept. of Occupational Therapy
\nSecondary Appointment,
\nHuman Development and Family Studies
\nColorado State University

<\/p>\n

\"StarrJacqueline Starr, Ph.D., M.S., M.P.H<\/strong>.
\nConsultant
\nUniversity of Washington

<\/p>\n

Study Staff (Slone Epidemiology Center):<\/b><\/p>\n

\"CrowellLisa Crowell, R.N.<\/strong>
\nResearch Coordinator<\/p>\n



\"RosieMichelle Rosie , B.A.<\/strong>
\nPsychometrist<\/p>\n



\"BairosMichael Bairos, B.S.<\/strong>
\nDatabase Analyst<\/p>\n



\"KneerKrisandra Kneer, B.S.<\/strong>
\nPsychometrist<\/p>\n

 <\/p>\n


Study Staff (Seattle Children\u2019s Hospital Research Institute):<\/b><\/p>\n

\"Gangan<\/a>Aurora Gangan, B.A.<\/strong>
\nResearch Coordinator

<\/p>\n

\"Silver-HeilmanKate Silver-Heilman, M.Ed.<\/strong>
\nPsychometrist

<\/p>\n

\"ConnerSharman Conner, M.A.<\/strong>
\nStudy Manager

<\/p>\n

\"DanielsKristen Daniels<\/strong>
\nResearch Data Coordinator

<\/p>\n

<\/div>\n<\/div>\n\n

Study Details<\/h3>
<\/p>\n

Source of Funding:<\/b><\/p>\n

National Institute of Dental and Craniofacial Research (NIDCR)<\/p>\n

Study Period:<\/b><\/p>\n

July 2010 to 2015<\/p>\n

<\/div>\n<\/div>\n\n

Associated Studies<\/h3>
<\/p>\n