{"id":148,"date":"2012-08-01T21:43:34","date_gmt":"2012-08-02T01:43:34","guid":{"rendered":"https:\/\/www.bu.edu\/nerscic\/?page_id=148"},"modified":"2015-11-19T22:31:50","modified_gmt":"2015-11-20T03:31:50","slug":"currently-recruiting","status":"publish","type":"page","link":"https:\/\/www.bu.edu\/nerscic\/research\/currently-recruiting\/","title":{"rendered":"Currently Recruiting"},"content":{"rendered":"

The following NERSCIC studies are currently looking for participants:<\/b><\/span><\/h4>\n

<\/h3>\n

National Spinal Cord Injury Model Systems Outcomes Database Study (NSCIMS DB)<\/span><\/h3>\n

The purpose of the this database study\u00a0is to allow researchers and healthcare professionals to evaluate trends over time for many aspects of spinal cord injury.\u00a0 Data collection begins during the inpatient rehabilitation stay, is updated approximately one year after injury, and every five years thereafter.\u00a0 No medical procedures are involved and information is gathered through a one-on-one interview by phone or in person.<\/p>\n

Eligible participants for follow-up interviews:
\n<\/b>1. Consumers with a diagnosis of traumatic SCI who received their initial inpatient rehabilitation at the New England Regional Spinal Cord Injury Center at Boston Medical Center (previously named Boston City Hospital, University Hospital, and Boston University Medical Center), Gaylord Specialty Healthcare, or Hospital for Special Care.
\n2. At least 18 years age at injury<\/p>\n

    <\/ol>\n

    Study involves:
    \n<\/b>35-45 minute interviews by phone or in person
    \nYou will receive $25 for completing\u00a0each<\/b>\u00a0follow-up interview at 1 year after injury, and each five years thereafter.\u00a0 (Years 1, 5, 10, 15, 20\u2026)<\/p>\n

    If you received your inpatient rehabilitation at any of the NERSCIC Network hospitals, have moved or changed your contact information, and are interested in continuing your participation in these important follow-up interviews, please contact:<\/span>
    \n
    <\/b>Diana Pernigotti
    \ndpernigotti@gaylord.org<\/a>
    \n1-866-429-5673 ext. 3563 (toll free)
    \nPlease provide your name, phone number and\u00a0best day\/time to call,
    \n<\/em>and\/or your email address so we can contact you about your next follow-up interview.<\/em><\/p>\n

    \n

    My Care My Call\u00a0(MCMC)<\/span><\/span><\/h3>\n

    No Longer Recruiting<\/span><\/em><\/h4>\n

    My Care My Call (MCMC) is designed to test if a peer-led empowerment training program delivered by phone over\u00a0a six month period can improve access to quality primary care and preventative services for people with traumatic spinal cord injury (SCI). MCMC and Peer Health Coaches provide goal-setting support, health care self-advocacy training, information, and referrals to try to help individuals with SCI with problems they may face in finding and maintaining quality primary care, including preventive screenings and prevention of secondary conditions. Coaches offer tools to help prepare people for office visits, as well as information and encouragement to connect people to community resources, services for equipment, and other resources related to primary care. MCMC incorporates phonecalls from a peer health coach, a user-friendly Resource Guide, and recorded vignettes from peers. Read more about how My Care My Call could offer help and support\u00a0for\u00a0primary care, equipment, or health-related issues.<\/a><\/p>\n

    Eligible participants:<\/strong>
    \n1. \u00a0 Have a non-progressive spinal cord injury
    \n2. \u00a0 Have an injury that occurred at least one year ago
    \n3. \u00a0 Must be at least 18 years of age and living in MA or CT<\/p>\n

    Participation in the Study Group involves:<\/strong>
    \n<\/strong>Weekly phonecalls\u00a0x 2 months
    \nBi-weekly\u00a0phonecalls\u00a0x 2 months
    \nMonthly phonecalls x 2 months
    \nEach phonecall\u00a0is\u00a0approximately 20-30\u00a0minutes<\/p>\n

    \n

    Equity and Quality in Assistive Technology (EQuATe)<\/span>
    for Individuals with Spinal Cord Injury<\/span><\/h3>\n

    No Longer Recruiting<\/span><\/em><\/h4>\n

    NERSCIC is joining eight other model systems to explore wheelchair equipment and services provided to individuals with SCI of different ethnic, economic, and social backgrounds. \u00a0The goal of this study is to improve wheelchair services for all individuals with SCI equally, to improve overall health and participation in life. \u00a0This study explores many individual factors that may influence the quality of equipment prescribed and how satisfied people are with their equipment. Factors that could have an impact on the equipment people receive include race, income, health literacy, discrimination, and trust in the health care system. Learning about wheelchair failures will help individuals with SCI make informed choices about their wheelchair equipment.<\/p>\n

    Eligible participants:<\/strong>
    \n1. Have a non-progressive spinal cord injury
    \n2. Have an injury that occurred at least one year ago
    \n3. Must be at least 16 years of age<\/p>\n

    Study involves:
    \n<\/strong>Two interviews, which may be done at different times:
    \n1st interview- approximately 45 minutes by phone or in person
    \n2nd interview- 30 minutes by phone or in person<\/p>\n

    \n

    <\/h3>\n

    Evaluating the Sensitivity and Responsiveness of the<\/span>
    \n SCI Quality of Life Computer Adaptive Testing (SCI-QOL)<\/span><\/h3>\n

    No Longer Recruiting
    <\/span><\/em><\/h4>\n

    This study looks at quality of life after spinal cord injury.\u00a0The SCI-QOL CAT questionnaire will measure changes in key areas\u00a0at different stages of the recovery process.\u00a0 Questions are based on vasrious aspects of your\u00a0emotional, social, and physical functioning.\u00a0\u00a0This study will also evaluate the sensitivity of the SCI-QOL scales.<\/p>\n

    Eligible participants:
    \n<\/b>1.\u00a0 Have a diagnosis of SCI
    \n2.\u00a0 Have received inpatient rehabilitation at Gaylord Specialty Healthcare or Hospital for Special Care
    \n3.\u00a0 At least 18 years of age<\/p>\n

    Study involves three interviews:
    \n<\/b>1st<\/sup>\u00a0interview- 1 hour while inpatient
    \nYou will receive $20 for completing this interview<\/p>\n

    2nd<\/sup>\u00a0interview- approximately 12 months after injury
    \n30 minutes by phone or in person
    \nYou will receive $30 for completing this interview<\/p>\n

    3rd<\/sup>\u00a0interview- approximately\u00a024 months after injury
    \n30 minutes by phone or in person
    \nYou will receive $40 for completing this interview,
    \nfor a total of $90 for participating in all three interviews.<\/p>\n

    \n

    Enhancement and Evaluation of the<\/span>
    \n SCI-Functional Index \u00a0(SCI-FI)<\/span><\/h3>\n

    No Longer Recruiting<\/span><\/em><\/h4>\n

    The New England Regional Spinal Cord Injury Center is working to develop a questionnaire that doctors, researchers, and policy makers will use to learn about how having a spinal cord injury (SCI) affects people\u2019s physical functioning in their daily lives.\u00a0 The goal of this study is to create a short SCI-specific questionnaire to be used during your follow-up care appointments, to assess and document changes in your functioning over time. \u00a0Current functional measures used in SCI\u00a0evaluate a limited number of functional activities or have a specific focus\u2013 either on\u00a0diagnosis (for example, tetraplegia) or on type of activity (for example, wheelchair use or\u00a0walking ability but not both). \u00a0This research study is developing a single functional measure that can be used to assess all types of activities across all SCI levels and degrees of injury.\u00a0\u00a0 This improved way of measuring function would be a better way to determine if new treatments for SCI effectively improve function. \u00a0Read more about developing the SCI-FI.<\/a><\/p>\n

    Eligible participants:
    \n<\/b>1. \u00a0Have a diagnosis of traumatic SCI- any level, complete or incomplete
    \n<\/b>2.\u00a0\u00a0Must be 18 years or older<\/p>\n

    Study involves:
    \n<\/b>One 45 minute interview by phone or in person
    \nYou will receive $25 for completing the study<\/p>\n

    .<\/em><\/p>\n

     <\/p>\n

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     <\/p>\n","protected":false},"excerpt":{"rendered":"

    The following NERSCIC studies are currently looking for participants: National Spinal Cord Injury Model Systems Outcomes Database Study (NSCIMS DB) The purpose of the this database study\u00a0is to allow researchers and healthcare professionals to evaluate trends over time for many aspects of spinal cord injury.\u00a0 Data collection begins during the inpatient rehabilitation stay, is updated […]<\/p>\n","protected":false},"author":5972,"featured_media":0,"parent":19,"menu_order":3,"comment_status":"closed","ping_status":"closed","template":"","meta":[],"_links":{"self":[{"href":"https:\/\/www.bu.edu\/nerscic\/wp-json\/wp\/v2\/pages\/148"}],"collection":[{"href":"https:\/\/www.bu.edu\/nerscic\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.bu.edu\/nerscic\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.bu.edu\/nerscic\/wp-json\/wp\/v2\/users\/5972"}],"replies":[{"embeddable":true,"href":"https:\/\/www.bu.edu\/nerscic\/wp-json\/wp\/v2\/comments?post=148"}],"version-history":[{"count":50,"href":"https:\/\/www.bu.edu\/nerscic\/wp-json\/wp\/v2\/pages\/148\/revisions"}],"predecessor-version":[{"id":3186,"href":"https:\/\/www.bu.edu\/nerscic\/wp-json\/wp\/v2\/pages\/148\/revisions\/3186"}],"up":[{"embeddable":true,"href":"https:\/\/www.bu.edu\/nerscic\/wp-json\/wp\/v2\/pages\/19"}],"wp:attachment":[{"href":"https:\/\/www.bu.edu\/nerscic\/wp-json\/wp\/v2\/media?parent=148"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}