{"id":784,"date":"2014-08-05T13:16:04","date_gmt":"2014-08-05T17:16:04","guid":{"rendered":"https:\/\/www.bu.edu\/fsao\/?page_id=784"},"modified":"2017-07-27T09:35:20","modified_gmt":"2017-07-27T13:35:20","slug":"elder-care","status":"publish","type":"page","link":"https:\/\/www.bu.edu\/fsao\/resources\/elder-care\/","title":{"rendered":"Elderly or Disabled Caregiving"},"content":{"rendered":"<p>Taking care of family and loved ones can be a joy or a burden.\u00a0\u00a0 Caring for a child who grows and moves towards independence is hard work, but doesn\u2019t last forever.\u00a0 Caring for an older person as he or she ages and declines in physical and mental functioning may be exhausting, sad or frustrating, and the process can be prolonged.<\/p>\n<p>For those of us who are working, caring for older parents and perhaps younger children, life can become stressful.\u00a0 Almost 44 million Americans \u2013 1 in 5 adults- are caregivers for a relative or friend over the age of 50.\u00a0 Many of us are in the prime of our professional work life and juggling the needs of three generations.\u00a0 Being sandwiched with the needs of others can take a toll on our effectiveness at work, our engagement with our families and our health.<\/p>\n<p>Dave Shiflett wrote in the <i>Wall Street Journal<\/i> of June 27, 2014 about caring for his father, who suffered from dementia and died at age 91.\u00a0 He notes that 5 million Americans have some form of dementia, which robs people of their memory, personality and dignity.\u00a0\u00a0 But he notes that the elderly \u201chave a few things to teach their baby boomer offspring about toughness, perseverance, quality of life and, especially love . . . We are often at our best when life is at its worst\u201d.\u00a0 He and his wife took in his parents and cared for them until his father died.\u00a0 He describes his father\u2019s decline vividly: \u201cstripped to the bone by a pitiless disease\u201d.\u00a0 But he notes that they drew closer as a family in \u201ca sad but strangely beautiful part of our song of life.\u201d<\/p>\n<p><b>Work and caregiving<\/b><\/p>\n<p>More than 26 million working people are also caregivers for their older loved ones (The National Alliance for Caregiving and AARP, 2209).\u00a0 Many of these people are also caring for younger loved ones, children or grandchildren.\u00a0\u00a0 Many of us worry that our work with be affected by caregiving needs, that we might have to miss work for medical appointments, grocery shopping and errands.\u00a0 We also might be preoccupied with thinking about how to manage everything and fear that we will become distracted.<\/p>\n<p><b>Caregiving responsibilities<\/b> for someone at home may include:<\/p>\n<ul>\n<li>Providing companionship and emotional support<\/li>\n<li>Helping with household tasks<\/li>\n<li>Handling bills and\/or insurance claims<\/li>\n<li>Assisting with personal care (dressing, toileting, hygiene, eating, walking, transferring)<\/li>\n<li>Performing \u00a0nursing procedures at home<\/li>\n<li>Administering multiple medications<\/li>\n<li>Identifying and coordinating services<\/li>\n<li>Hiring and supervising direct care workers<\/li>\n<li>Arranging and providing transportation<\/li>\n<li>Communicating with health care professionals<\/li>\n<li>Serving as an advocate at medical appointments and\/or hospitalizations<\/li>\n<li>Initiating difficult conversations about care needs, such as giving up driving<\/li>\n<li>Coordinating care during transitions, such as from the hospital to home<\/li>\n<\/ul>\n<p>If you are involved in caregiving for a loved one, take this self-assessment to monitor the emotional and physical distress you may experience:<\/p>\n<p><b>Caregiver Self- Assessment<\/b><\/p>\n<ul>\n<li>I see that my loved one is getting older and needing more help with activities of daily living.<\/li>\n<li>I worry when I know that my loved one is alone.<\/li>\n<li>I feel overwhelmed when I think about what my loved one needs.<\/li>\n<li>I feel strained between my work and family responsibilities.<\/li>\n<li>I feel useful and needed.<\/li>\n<li>I\u2019ve been edgy, irritable or lonely.<\/li>\n<li>I\u2019ve had difficulty making decisions.<\/li>\n<li>I\u2019m embarrassed about my loved one\u2019s condition and behavior.<\/li>\n<li>Caring for my loved one affects my relationship with other family members and friends in a negative way.<\/li>\n<li>I don\u2019t have enough money to take care of my loved one in addition to my other financial responsibilities.<\/li>\n<li>I feel burdened by my loved one.<\/li>\n<li>I feel guilt because I feel burdened.<\/li>\n<\/ul>\n<p>If you have answered yes to 4 or more of these questions, you may want to talk with a professional with experience in working with the elderly and their families. It is important to monitor how much emotional and physical distress you experience in caring for your loved one. You may need to consider additional help if your elderly loved one\u2019s needs are not being met, if you are not able to attend to your personal and professional responsibilities, or if you are experiencing overwhelming distress.<\/p>\n<p><b>What can\/should you do<\/b><\/p>\n<ul>\n<li>Start a respectful conversation with your loved ones before a crisis about their wishes for health care, their preferences and values, and finances.\u00a0\u00a0 If your loved one refuses to discuss these things, you may anticipate a crisis at some point and have to plan from there.<\/li>\n<li>Find a team of family members, friends, colleagues who may share your concerns about your loved ones.\u00a0 Try not to do it alone, if possible.<\/li>\n<li>Make a plan for caregiving if a need for it arises.\u00a0 Plans can change as need dictates but a plan can give you and your loved ones peace of mind.<\/li>\n<li>Take care of yourself by anticipating (when possible) the physical, emotional and financial demands of caregiving.<\/li>\n<li>Find support for yourself.\u00a0 Caregiving can be stressful.<\/li>\n<li>Think about your own aging and communicate your wishes, hopes (and possibly finances) to people who will be concerned about you, well ahead of any crisis situation.<\/li>\n<\/ul>\n<p>Boston University as an organization is sympathetic to caregiver needs. \u00a0The University has policies and resources that can support caregivers in remaining on the job and still be able to meet the needs of your loved ones.<\/p>\n<p><b>\u00a0<\/b><b>Resources<\/b><\/p>\n<p>The BU Faculty Staff Assistance Program offers confidential consultation, counseling and referral to community resources for employees who are caring for a loved one.<em><strong>\u00a0<\/strong><\/em><strong>Contact us at 617-353-5381.<\/strong><\/p>\n<p><b>Other Resources Include:<\/b><\/p>\n<p><span style=\"text-decoration: underline;\"><b><\/b><\/span><b>CJP Senior Direct<\/b> <strong>free hotline:<\/strong>\u00a0800-980-1982; or their website<a href=\"https:\/\/www.jewishboston.com\/organization\/cjp-seniordirect\/\" target=\"_blank\">\u00a0<b>http:\/\/www.cjpseniordirect.org\/index.jsp<\/b><\/a><\/p>\n<p><b>The\u00a0<\/b><b>Massachusetts Executive Office of Elder Affairs: <\/b><a href=\" http:\/\/www.mass.gov\/elders\/\" title=\"The Massachusetts Executive Office of Elder Affairs\" target=\"_blank\">http:\/\/www.mass.gov\/elders\/<\/a><\/p>\n<p><b>The Massachusetts Council on Aging<\/b>: <a href=\"http:\/\/www.mcoaonline.com\/\" title=\"Massachusetts Council on Aging\" target=\"_blank\">http:\/\/www.mcoaonline.com\/<\/a><\/p>\n<p><b><b>The Massachusetts Councils on Aging\u00a0<\/b>Benefits Check Up<\/b> <a href=\"https:\/\/www.benefitscheckup.org\/cf\/index.cfm?partner_id=105\" title=\"Massachusetts Councils on Aging Benefits Check Up\" target=\"_blank\">https:\/\/www.benefitscheckup.org\/cf\/index.cfm?partner_id=105<\/a><\/p>\n<p><b>Links to Individual Towns and Cities: <\/b>This is an alphabetical link to the government websites of cities and towns in Massachusetts, where you can search for elder care services:<b><span style=\"text-decoration: underline;\"> <\/span><\/b><a href=\"http:\/\/www.mma.org\/city-and-town-web-sites\" title=\"Massachusetts Municipal Association City and Town Web Sites\" target=\"_blank\"><b>http:\/\/www.mma.org\/city-and-town-web-sites<\/b><\/a><\/p>\n<p><strong>Central Boston Elder Services:<\/strong> <a href=\"http:\/\/www.centralboston.org\/\">http:\/\/www.centralboston.org\/<\/a><\/p>\n<p><b>South Shore Elder Services:<span style=\"text-decoration: underline;\"> <\/span><\/b><a href=\"http:\/\/www.sselder.org\/\" title=\"South Shore Elder Services\" target=\"_blank\">http:\/\/www.sselder.org\/<\/a><b><span style=\"text-decoration: underline;\"><\/span><\/b><\/p>\n<p><strong>Firstlight West Suburban Homecare:<\/strong><a href=\"http:\/\/www.firstlighthomecare.com\/home-healthcare-west-suburban-boston\/why-firstlight\/\">\u00a0http:\/\/www.firstlighthomecare.com\/home-healthcare-west-suburban-boston\/why-firstlight\/<\/a><\/p>\n<p><strong>Minuteman Senior Services:<\/strong>\u00a0<a href=\"https:\/\/www.minutemansenior.org\/\">https:\/\/www.minutemansenior.org\/<\/a><\/p>\n<p><b>Hessco Elder Services<\/b> Serves the towns of Canton, Dedham, Foxboro, Medfield, Millis, Norfolk, Norwood, Plainville, Sharon, Walpole, Westwood, and Wrentham:\u00a0<a href=\"http:\/\/hessco.org\/\" title=\"HESSCO\" target=\"_blank\">http:\/\/hessco.org\/<\/a><\/p>\n<p><b>Services and Advocacy for Gay, Lesbian, Bisexual, and Transgender Elders:<\/b><a href=\" http:\/\/www.sageusa.org\/\" title=\"Services and Advocacy for Gay, Lesbian,Bisexual, and Transgender Elders\" target=\"_blank\"> http:\/\/www.sageusa.org\/<\/a><\/p>\n<p><b>Greater Boston Legal Services Elder Health and Disability Advocacy:<\/b> <a href=\"http:\/\/www.gbls.org\/our-work\/elder-health-disability\" title=\"Greater Boston Legal Services Elder Health and Disability Advocacy\" target=\"_blank\">http:\/\/www.gbls.org\/our-work\/elder-health-disability<\/a><\/p>\n<p><b>Eldercare.gov<\/b> will help you locate resources near you:\u00a0<a href=\"http:\/\/www.eldercare.gov\/\" title=\"Eldercare.gov\" target=\"_blank\">http:\/\/www.eldercare.gov\/<\/a><\/p>\n<p><b>The National Association of Area Agencies on Aging<\/b>\u00a0helps older and disabled people live with dignity and choices in their homes and communities for as long as possible.<span style=\"text-decoration: underline;\"> <\/span><a href=\"http:\/\/www.n4a.org\/\" title=\"National Association of Area Agencies on Aging\" target=\"_blank\">http:\/\/www.n4a.org\/<\/a><b><span style=\"text-decoration: underline;\"><\/span><\/b><\/p>\n<p><b>The Department of Health and Human Services<span style=\"text-decoration: underline;\"> <\/span><\/b>has a website that focuses on the needs of older Americans and people with disabilities across their lifespan:\u00a0<b><span style=\"text-decoration: underline;\">\u00a0<\/span><\/b><a href=\"https:\/\/www.acl.gov\/node\/792\" title=\"Department of Health and Human Services\" target=\"_blank\">http:\/\/www.acl.gov\/index.aspx<\/a><b><span style=\"text-decoration: underline;\"><\/span><\/b><\/p>\n<p><b><span style=\"text-decoration: underline;\">For Caregivers<\/span><\/b><\/p>\n<p><b>PBS <\/b>has a website that was created in conjunction with a film called <i>Caring for your Parents <\/i>by Michael Kirk . It includes a downloadable handbook<b>: <\/b><a href=\"http:\/\/www.pbs.org\/wgbh\/caringforyourparents\/index.html\" title=\"Caring for your parents\" target=\"_blank\">http:\/\/www.pbs.org\/wgbh\/caringforyourparents\/index.html<\/a><b><\/b><\/p>\n<p><b>AARP<\/b> has an online caregiver resource center that addresses many facets of caregiving, including a planning guide, online chats, and the latest caregiving news:<a href=\" http:\/\/www.aarp.org\/home-family\/caregiving\/?cmp=SN-RR1AD-MBR&amp;intcmp=ASI-RR-HEA-CAREGIVING\" title=\"Caregiving\" target=\"_blank\"> http:\/\/www.aarp.org\/home-family\/caregiving\/?cmp=SN-RR1AD-MBR&amp;intcmp=ASI-RR-HEA-CAREGIVING<\/a><\/p>\n<p><b>National Alliance for Caregiving: <\/b><a href=\" http:\/\/www.caregiving.org\/\" title=\"National Alliance for Caregiving\" target=\"_blank\">http:\/\/www.caregiving.org\/<\/a><b><\/b><\/p>\n<p><b>Family Caregiver Alliance<\/b> is a national community-based nonprofit organization that addresses the needs of families and friends providing long-term care for loved ones at home\u00a0: <a href=\"https:\/\/caregiver.org\/\" title=\"Family Caregiver Alliance\" target=\"_blank\">https:\/\/caregiver.org\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Taking care of family and loved ones can be a joy or a burden.\u00a0\u00a0 Caring for a child who grows and moves towards independence is hard work, but doesn\u2019t last forever.\u00a0 Caring for an older person as he or she ages and declines in physical and mental functioning may be exhausting, sad or frustrating, and [&hellip;]<\/p>\n","protected":false},"author":8612,"featured_media":0,"parent":9,"menu_order":3,"comment_status":"closed","ping_status":"open","template":"","meta":[],"_links":{"self":[{"href":"https:\/\/www.bu.edu\/fsao\/wp-json\/wp\/v2\/pages\/784"}],"collection":[{"href":"https:\/\/www.bu.edu\/fsao\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.bu.edu\/fsao\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.bu.edu\/fsao\/wp-json\/wp\/v2\/users\/8612"}],"replies":[{"embeddable":true,"href":"https:\/\/www.bu.edu\/fsao\/wp-json\/wp\/v2\/comments?post=784"}],"version-history":[{"count":28,"href":"https:\/\/www.bu.edu\/fsao\/wp-json\/wp\/v2\/pages\/784\/revisions"}],"predecessor-version":[{"id":1756,"href":"https:\/\/www.bu.edu\/fsao\/wp-json\/wp\/v2\/pages\/784\/revisions\/1756"}],"up":[{"embeddable":true,"href":"https:\/\/www.bu.edu\/fsao\/wp-json\/wp\/v2\/pages\/9"}],"wp:attachment":[{"href":"https:\/\/www.bu.edu\/fsao\/wp-json\/wp\/v2\/media?parent=784"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}