{"id":3931,"date":"2022-06-29T12:09:50","date_gmt":"2022-06-29T16:09:50","guid":{"rendered":"https:\/\/www.bu.edu\/ceid\/?page_id=3931"},"modified":"2024-07-12T10:27:31","modified_gmt":"2024-07-12T14:27:31","slug":"long-covid-resources","status":"publish","type":"page","link":"https:\/\/www.bu.edu\/ceid\/training-education\/long-covid-resources\/","title":{"rendered":"Long COVID Resources"},"content":{"rendered":"<p><span>Below, you can find a variety of resources available to the general public, policymakers, and educators that we share to encourage access to greater knowledge about Long COVID.<\/span><\/p>\n<p><em>Last updated June 29, 2022<\/em><\/p>\n<h3>What is Long COVID?<\/h3>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><a href=\"https:\/\/www.cdc.gov\/coronavirus\/2019-ncov\/long-term-effects\/index.html#:~:text=Some%20people%20who%20have%20been,(PCC)%20or%20long%20COVID.\"><span style=\"font-weight: 400;\">LONG COVID or Post-COVID Conditions | CDC<\/span><\/a><\/li>\n<\/ul>\n<h3>For Patient Wellbeing:<\/h3>\n<ul>\n<li><a href=\"https:\/\/www.bostonmagazine.com\/health\/2021\/03\/23\/long-covid\/\"><span style=\"font-weight: 400;\">Everything You Need To Know About Coping With Long COVID<\/span><\/a><\/li>\n<li><a href=\"https:\/\/www.wearebodypolitic.com\/\"><span style=\"font-weight: 400;\">Body Politic<\/span><\/a><\/li>\n<li><a href=\"https:\/\/www.longhauler-advocacy.org\/\"><span style=\"font-weight: 400;\">COVID-19 Longhauler Advocacy<\/span><\/a><span style=\"font-weight: 400;\">\u00a0<\/span><\/li>\n<li><a href=\"https:\/\/longcovid.physio\/long-covid-video-series\"><span style=\"font-weight: 400;\">Long COVID Physio <\/span><span style=\"font-weight: 400;\">Video Series<\/span><\/a><span style=\"font-weight: 400;\"> &amp; <\/span><a href=\"https:\/\/longcovid.physio\/resources\"><span style=\"font-weight: 400;\">Resources<\/span><\/a><\/li>\n<li><a href=\"https:\/\/docs.google.com\/document\/d\/1VfENjAiOBKryT-dIOFyU8CyEAAKVR5xk9WyvlZF-u4M\/edit\"><span style=\"font-weight: 400;\">A Comprehensive Guide for COVID-19 Longhaulers and Physicians: The PASC Master Document<\/span><\/a><\/li>\n<li><a href=\"https:\/\/acl.gov\/covid19\/resources-people-experiencing-long-covid\"><span style=\"font-weight: 400;\">Resources for People with Long COVID | ACL Administration for Community Living<\/span><\/a><\/li>\n<li><a href=\"https:\/\/longcovidfamilies.org\/\"><span style=\"font-weight: 400;\">Long COVID Families<\/span><\/a><b><\/b><\/li>\n<li><b><a href=\"https:\/\/www.longcovidkids.org\/what-is-long-covid\"><span style=\"font-weight: 400;\">Long COVID Kids &#8211; What is Long COVID?<\/span><\/a><\/b><\/li>\n<li><a href=\"https:\/\/www.longcovid.org\/\"><span style=\"font-weight: 400;\">Long COVID Support<\/span><\/a><\/li>\n<\/ul>\n<ul><\/ul>\n<ul><\/ul>\n<h3>Support groups:<\/h3>\n<ul>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/longcovid\/\"><span style=\"font-weight: 400;\">Long COVID support group (Facebook) <\/span><\/a><span style=\"font-weight: 400;\">\u00a0<\/span><\/li>\n<li><a href=\"https:\/\/www.facebook.com\/groups\/644026989529142\"><span style=\"font-weight: 400;\">Black COVID-19 Survivors (Facebook)\u00a0<\/span><\/a><\/li>\n<li><a href=\"https:\/\/www.wearebodypolitic.com\/covid-19\"><span style=\"font-weight: 400;\">Body Politic Support Group<\/span><\/a><\/li>\n<li><a href=\"https:\/\/www.meaction.net\/groups\/\"><span style=\"font-weight: 400;\">#MeAction<\/span><\/a><\/li>\n<li><a href=\"https:\/\/batemanhornecenter.org\/outreach\/support-connect\/\"><span style=\"font-weight: 400;\">Bateman Horne Center<\/span><\/a><span style=\"font-weight: 400;\">\u00a0<\/span><\/li>\n<li><a href=\"https:\/\/www.facebook.com\/C19LAP\/groups\"><span style=\"font-weight: 400;\">C-19 Longhauler Advocacy Project Support Group\u00a0<\/span><\/a><\/li>\n<\/ul>\n<h3>For Caregivers:<\/h3>\n<ul>\n<li><a href=\"https:\/\/www.mass.gov\/info-details\/covid-19-resources-for-family-support-professionals\"><span style=\"font-weight: 400;\">Mass.gov Massachusetts Home Visiting Initiative<\/span><\/a><\/li>\n<li><a href=\"https:\/\/www.nia.nih.gov\/health\/government-covid-19-resources-older-adults\"><span style=\"font-weight: 400;\">Government COVID-19 Resources for Older Adults\u00a0<\/span><\/a><\/li>\n<li><a href=\"https:\/\/www.cdc.gov\/coronavirus\/2019-ncov\/long-term-effects\/care-post-covid.html\"><span style=\"font-weight: 400;\">Caring for People with Post-COVID Conditions\u00a0<\/span><\/a><\/li>\n<li><a href=\"https:\/\/www.caregiving.org\/resources\/covid-19-resources-for-families\/\"><span style=\"font-weight: 400;\">National Alliance for Caregiving &#8211; COVID-19 Resources for Families\u00a0<\/span><\/a><\/li>\n<\/ul>\n<h3>Organizational Resources:<\/h3>\n<ul>\n<li><a href=\"https:\/\/preventepidemics.org\/covid19\/us-response\/campaigns\/voices-of-long-covid\/\"><span style=\"font-weight: 400;\">Voices of Long COVID<\/span><\/a><\/li>\n<li><a href=\"https:\/\/patientresearchcovid19.com\/\"><span style=\"font-weight: 400;\">Patient-Led Research Collaborative<\/span><\/a><\/li>\n<\/ul>\n","protected":false},"excerpt":{"rendered":"<p>Below, you can find a variety of resources available to the general public, policymakers, and educators that we share to encourage access to greater knowledge about Long COVID. Last updated June 29, 2022 What is Long COVID? LONG COVID or Post-COVID Conditions | CDC For Patient Wellbeing: Everything You Need To Know About Coping With [&hellip;]<\/p>\n","protected":false},"author":19809,"featured_media":0,"parent":30,"menu_order":4,"comment_status":"closed","ping_status":"closed","template":"","meta":[],"_links":{"self":[{"href":"https:\/\/www.bu.edu\/ceid\/wp-json\/wp\/v2\/pages\/3931"}],"collection":[{"href":"https:\/\/www.bu.edu\/ceid\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.bu.edu\/ceid\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.bu.edu\/ceid\/wp-json\/wp\/v2\/users\/19809"}],"replies":[{"embeddable":true,"href":"https:\/\/www.bu.edu\/ceid\/wp-json\/wp\/v2\/comments?post=3931"}],"version-history":[{"count":8,"href":"https:\/\/www.bu.edu\/ceid\/wp-json\/wp\/v2\/pages\/3931\/revisions"}],"predecessor-version":[{"id":6206,"href":"https:\/\/www.bu.edu\/ceid\/wp-json\/wp\/v2\/pages\/3931\/revisions\/6206"}],"up":[{"embeddable":true,"href":"https:\/\/www.bu.edu\/ceid\/wp-json\/wp\/v2\/pages\/30"}],"wp:attachment":[{"href":"https:\/\/www.bu.edu\/ceid\/wp-json\/wp\/v2\/media?parent=3931"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}