{"id":6101,"date":"2020-05-07T13:32:44","date_gmt":"2020-05-07T17:32:44","guid":{"rendered":"https:\/\/www.bu.edu\/autism\/?page_id=6101"},"modified":"2020-05-07T13:36:22","modified_gmt":"2020-05-07T17:36:22","slug":"covid-19-resources","status":"publish","type":"page","link":"https:\/\/www.bu.edu\/autism\/resources\/covid-19-resources\/","title":{"rendered":"COVID-19 Resources"},"content":{"rendered":"<p style=\"text-align: center;\"><a href=\"\/autism\/files\/2020\/03\/CARECOVIDmessage.png\"><img loading=\"lazy\" src=\"\/autism\/files\/2020\/03\/CARECOVIDmessage-533x300.png\" alt=\"\" class=\"alignnone wp-image-6048\" width=\"667\" height=\"375\" srcset=\"https:\/\/www.bu.edu\/autism\/files\/2020\/03\/CARECOVIDmessage-533x300.png 533w, https:\/\/www.bu.edu\/autism\/files\/2020\/03\/CARECOVIDmessage-768x432.png 768w, https:\/\/www.bu.edu\/autism\/files\/2020\/03\/CARECOVIDmessage-1024x576.png 1024w, https:\/\/www.bu.edu\/autism\/files\/2020\/03\/CARECOVIDmessage.png 1999w\" sizes=\"(max-width: 667px) 100vw, 667px\" \/><\/a><\/p>\n<p style=\"text-align: center;\"><u>Resources for CARE Families<\/u><\/p>\n<p style=\"text-align: center;\"><em>Compiled from the ASF\u2019s Resources and the CARE Team<\/em><\/p>\n<p><strong>We hope you\u2019ll find some of the resources below helpful as you navigate these very difficult times of establishing drastically different routines for your family.<\/strong><\/p>\n<p><strong>COVID-19 Resources for The ASD Community<\/strong><\/p>\n<ul>\n<li><a href=\"https:\/\/iacc.hhs.gov\/resources\/coronavirus\/?utm_source=newsletter&amp;utm_medium=email&amp;utm_campaign=spring_2020\">Coronavirus Resources: InterAgency Autism Coordinating Committee<\/a><\/li>\n<li><a href=\"http:\/\/Coping with Coronavirus: Support for the Autism Community\">Coping with Coronavirus: National Institute of Mental Health<\/a><\/li>\n<li><a href=\"https:\/\/docs.google.com\/spreadsheets\/u\/1\/d\/13B6hY73oPpd0dlzqQJ-_bZQgt0z5uW2Radblb-IqEOQ\/htmlview\">BMC&#8217;s Autism Program: Resources for Families<\/a><\/li>\n<\/ul>\n<p><strong>Managing Your Child\u2019s Education and Free Time<\/strong><\/p>\n<p>The Department of Education has published a Q&amp;A focused on providing services to children with disabilities during the coronavirus outbreak, which can be downloaded\u00a0<a href=\"https:\/\/www2.ed.gov\/policy\/speced\/guid\/idea\/memosdcltrs\/qa-covid-19-03-12-2020.pdf?fbclid=IwAR2-NcjXAryr8w-81nYPygukLfnk9Bvk8a8uLxoXitR8MPTBPe1NSfJhEYg\">here.<\/a><\/p>\n<p><a href=\"https:\/\/www.ncsautism.org\/\">The National Council on Severe Autism<\/a>\u00a0has created an online event for parents and caregivers to share stories, concerns, advice, and questions. Their guest commentators Lee Wachtel, MD, Medical Director, Neurobehavioral Unit, Kennedy Krieger Institute, and Alycia Halladay, PhD, Chief Science Officer, Autism Science Foundation, joined NCSA President Jill Escher and Vice President Feda Almaliti in leading the discussion. Topics included everything from hand washing to mommy guilt during this time. You can view the recorded\u00a0<a href=\"https:\/\/www.ncsautism.org\/blog\/ncsa-coronavirus-share-amp-carelive-on-march-17-11am-pacific\">video here.<\/a><\/p>\n<p>The Center for Discovery has shared great ideas for indoor and outdoor activities for families in the time of coronavirus. Click\u00a0<a href=\"https:\/\/thecenterfordiscovery.org\/safe-indoor-and-outdoor-activities-for-families-in-the-time-of-coronavirus\/\">here<\/a>\u00a0to view.<\/p>\n<p>The\u00a0<a href=\"https:\/\/nationalautismassociation.org\/\">National Autism Association<\/a>\u00a0has put together an excellent list of resources including teaching tools for kids, tips for caregivers and how to practice social distancing. Click\u00a0<a href=\"https:\/\/nationalautismassociation.org\/covid-19-resources-for-families\/?\">here<\/a>\u00a0for their list.<\/p>\n<p>Interested in taking a field trip without leaving the house?\u00a0<a href=\"https:\/\/artsandculture.google.com\/partner?hl=en\">Click here<\/a>\u00a0to take a virtual tour of famous museums around the world and\u00a0<a href=\"http:\/\/www.readwritethink.org\/parent-afterschool-resources\/activities-projects\/take-virtual-field-trip-30290.html?main-tab=2\">here<\/a>\u00a0for a virtual field trip lesson plan.<\/p>\n<p>Tamika Cody from News10 in Tampa interviewed local experts about t<a href=\"http:\/\/www.wtsp.com\/video\/life\/covid19-how-to-help-children-with-autism-adjust-during-self-isolation\/67-ed9d03e1-a639-4541-bf3a-9c087825a887?jwsource=cl\">hings you can do at home<\/a>\u00a0with kids with autism during this challenging time, including dealing with playdates and boredom.<\/p>\n<p>For a full list of education companies offering free subscriptions due to school closures,\u00a0<a href=\"https:\/\/vt.co\/news\/us\/here-is-the-entire-list-of-education-companies-offering-free-subscriptions-due-to-school-closures\/?fbclid=IwAR04lYDH2haii1G5aDJpx2TAoF_kqaTlbJAQGhkb8JMMdE9uhA6CMk0Zpfw\">click here.<\/a><\/p>\n<p><strong>Social Stories for COVID-19<br \/>\n<\/strong><\/p>\n<p><a href=\"https:\/\/www.nova.edu\/card\/index.html\">The University of Miami-Nova Southeastern University Center for Autism &amp; Relations Disabilities<\/a>\u00a0curated a fantastic list of resources such as social stories and visual tools for those working with individuals who have developmental disabilities, including special educators, therapists and families can be downloaded\u00a0<a href=\"https:\/\/www.smore.com\/udqm2-dealing-with-covid-19\">here<\/a>\u00a0and\u00a0<a href=\"https:\/\/padlet.com\/ms_christina18\/xnwpxiwo013e?fbclid=IwAR0Z37jLXhjm34siAwsISzgR2gu03HDtcYHwjTKJZESNJ_BOWwPNK0skpKU\">here.<\/a><\/p>\n<p>There\u2019s another great social story to help kids adjust to the disruption to their routine caused by having to stay home from school, released by the Howard County Autism Society, to be found <a href=\"https:\/\/howard-autism.org\/coronavirus-social-story\/\">here.<\/a><\/p>\n<p><strong>Handling your Autistic Child\u2019s Co-morbid Conditions During the Crisis<\/strong><a href=\"https:\/\/vt.co\/news\/us\/here-is-the-entire-list-of-education-companies-offering-free-subscriptions-due-to-school-closures\/?fbclid=IwAR04lYDH2haii1G5aDJpx2TAoF_kqaTlbJAQGhkb8JMMdE9uhA6CMk0Zpfw\"><\/a><\/p>\n<p><strong><u>Anxiety<\/u><\/strong><br \/>\nThe Autism Science Foundation\u2019s most recent podcast, hosted by ASF CSO Dr. Alycia Halladay, has great tips for handling your child\u2019s crisis-related anxiety. You can\u00a0<a href=\"https:\/\/asfpodcast.org\/archives\/946\">listen here<\/a>.<\/p>\n<p><strong><u>Epilepsy<\/u><\/strong><br \/>\nInfectious disease expert Dr. Stanley Plotkin says epilepsy does not increase the risk of contracting the coronavirus, nor does it add additional risk to someone who is diagnosed.<\/p>\n<p><a href=\"https:\/\/www.cureepilepsy.org\/\">CURE\u00a0<\/a>hosted a\u00a0<a href=\"https:\/\/www.facebook.com\/CUREforEpilepsy\/videos\/1289890507875116\/?hc_location=ufi\">Facebook live stream<\/a>\u00a0on COVID-19 with\u00a0neurologist Dr. Jeffrey Loeb, neuroimmunologist Dr. Michael Carrithers from the University of Illinois at Chicago, and pediatric neurologist Dr. Douglas R. Nordli from UChicago Medicine.<\/p>\n<p><a href=\"https:\/\/www.epilepsy.com\/\">The Epilepsy Foundation<\/a>\u00a0hosted a\u00a0<a href=\"https:\/\/www.facebook.com\/EpilepsyFoundationofAmerica\/\">Facebook live\u00a0<\/a>with Patty Osborne Shafer, RN, MN, Jacqueline French, MD and Elaine Wirrell, MD. A Facebook live in Spanish aired on\u00a0Thursday, March 19, at 8 p.m. ET with Angel Hernandez, MD and Joe Sirven, MD who answered questions from their Spanish-speaking community.<\/p>\n<p><a href=\"https:\/\/www.deepconnections.net\/welcome\">DEE-P Connections<\/a>, in conjunction with\u00a0<a href=\"https:\/\/www.facebook.com\/CDKL5foundation\/?amp%3Beid=ARAXCRmlC6-WIchDTT6tlqvRmiasMh1_I490XzJC0OfsLlvpETlS2FRxufaeT8pADdUvjQvYPdaU2fKX&amp;amp%3Bfref=mentions&amp;amp%3B__xts__%5B0%5D=68.ARD1kV-E19MLwf1VVqGoMpDusJlHbfQpa8Fh0WNKN4dYI4AgQmpukYunW0Nvez1GRBo66VIhRqlUIklDoR9TwOJ6RcAwuCxuNCQEFW1SC6zwY8bZmElQGIeB-IBg_km2BtOowcLcEO6nYgaXSJYPQkZSfh51okfL_me2tdj0S-WnwSPRY3PPUvkpJ2VjsiwrLIxBDz3aYs6xG_JrCwUQX0hji95SEnC14iSsuvrBuV0A9y_SfzbGgpzpTsDqFaLQfeKKgcXwgMBxWfP2DTGO86rSw6HTS1plpQje9n6hpGpOCvBoWCX1lv2HM5z1J2hnVYHwAAONwrWb9NJ-ieKNHEs\">International Foundation for CDKL5 Research-IFCR<\/a>\u00a0and\u00a0<a href=\"https:\/\/www.epilepsy.com\/\">Epilepsy Foundation of America<\/a>, is pleased to invite you to join us for a webinar specifically geared towards our families. On March 19th, at 7PM ET, they will host a webinar \u201cProtecting Medically Complex and\/or Immune-Suppressed Children with Epilepsy from COVID-19.\u201d Please register in advance at:<br \/>\n<a href=\"https:\/\/www.deepconnections.net\/upcoming-webinars\">https:\/\/www.deepconnections.net\/upcoming-webinars<\/a><\/p>\n<p><strong>Video modules to improve children\u2019s social and communication abilities<\/strong><\/p>\n<p><a href=\"https:\/\/helpisinyourhands.org\/course\/student\/dashboard\">Help is in Your Hands<\/a>\u00a0is a series of video modules for families of very young children with social communication challenges. Modules include narrated video lessons and examples of real parents and children interacting in their own homes, with suggestions for follow-up activities parents can try.<\/p>\n<p>The\u00a0<a href=\"http:\/\/www.autismnavigator.com\">Autism Navigator<\/a>\u00a0is a unique collection of web-based tools and courses that uses extensive video footage\u00a0to coach parents on delivering evidence-based tools in a multitude of settings. It includes the\u00a0<a href=\"https:\/\/autismnavigator.com\/courses\/\">Video Glossary\u00a0<\/a>that contains over 100 video clips to illustrate common treatments available for children with autism.<\/p>\n<p><strong>Medicaid Rules, Waivers and Changes<\/strong><\/p>\n<p>The Centers for Medicare and Medicaid Services are\u00a0<a href=\"https:\/\/www.cms.gov\/files\/document\/covid19-emergency-declaration-health-care-providers-fact-sheet.pdf\">taking actions to allow more flexibility<\/a>\u00a0for healthcare providers,\u00a0<a href=\"https:\/\/www.cms.gov\/newsroom\/press-releases\/telehealth-benefits-medicare-are-lifeline-patients-during-coronavirus-outbreak\">including expanded telemedicine access<\/a>, to provide services for those covered individuals.<\/p>\n<p>The\u00a0<a href=\"https:\/\/www.kff.org\/\">Kaiser Family Foundation<\/a>\u00a0issued a\u00a0<a href=\"https:\/\/www.kff.org\/medicaid\/issue-brief\/how-can-medicaid-enhance-state-capacity-to-respond-to-covid-19\/\">brief<\/a>\u00a0on how Medicaid can enhance state capacity to respond to COVID-19, including how they can broaden accessibility and coverage.<\/p>\n<p><strong>Legal Guidance<\/strong><\/p>\n<p>Autism Education Attorney Gary Mayerson\u00a0<a href=\"https:\/\/autismsciencefoundation.wordpress.com\/2020\/03\/20\/the-many-legal-issues-arising-out-of-the-covid-19-crisis\/\">shares information<\/a>\u00a0about how to work with your school district to ensure your child\u2019s IEP is being implemented appropriately and remote learning opportunities are being provided.<\/p>\n<p><strong>What to do if Your Family Member with Autism is Diagnosed with Coronavirus and Hospitalized<\/strong><\/p>\n<p>Psychiatric Mental Health Nurse Practitioner Erin Lopes\u00a0<a href=\"https:\/\/autismsciencefoundation.wordpress.com\/2020\/03\/20\/what-to-do-if-your-family-member-with-autism-is-diagnosed-with-coronavirus-and-hospitalized\/\">provides guidance<\/a>\u00a0on what to do if your family member with autism is diagnosed with coronavirus and hospitalized.<\/p>\n<p><strong>General Information<\/strong><\/p>\n<p>The\u00a0<a href=\"https:\/\/www.autism-society.org\/\">Autism Society of America<\/a>\u00a0launched a\u00a0<a href=\"https:\/\/www.facebook.com\/AutismSociety\/\">Facebook Live series<\/a>\u00a0dedicated to providing relevant, COVID-19 information for the autism community. The weekly broadcast will feature an expert discussing specific topics like mental health, federal emergency funding, and financial planning.<\/p>\n<p><a href=\"https:\/\/www.autismspeaks.org\/\">Autism Speaks<\/a>\u00a0has put together a comprehensive list of resources for the autism community organized by topic including for families, for educators and health professionals, non-english resources and WHO guidance for the public. Find the list\u00a0<a href=\"https:\/\/www.autismspeaks.org\/news\/covid-19-information-and-resources\">here<\/a>.<\/p>\n<p>Green Mountain self-advocates has written a social story about managing symptoms. You can find it\u00a0<a href=\"https:\/\/autismsciencefoundation.org\/wp-content\/uploads\/2020\/03\/Plain-Language-Information-on-Coronavirus.pdf\">here<\/a>.<\/p>\n<p>Autism Focused Intervention Resources &amp; Modules (AFIRM) has published a\u00a0<a href=\"http:\/\/r20.rs6.net\/tn.jsp?f=001kVmqBVPjruRVyvTbzkOIef9N5rZMY75Hvd7hLvO7-nYwQVE0syrQjpA6ZjnQgK2jrEsi9qeyCP3WlhEM_1X_vrFL7GIhrgob1styZl4t1JnO3IEKDNK3Hq8oBemjCKHl5MrlMB3aNs4X9zxcxENmvv_Y970tucVWQD2i5cix0fT7zAfl-kENfKiGTKGLGksn5PFBy-E-jfEvGDSACW6Ye88Vb5ZZS1s02vRZUwNJrZM31xRBUIIII7m9CdmiZ16VaJx6o1cRioBIaq26qyJq0oqDaDgIWkMrBV0GgSpehsrbCUTnem9vZ6GVART7kIMTGDMjHUovtdIaa6pASV1SouXPsPp4bymwsXHESA8Qc66O2C9RTp3e1u57BkaGUVFnIy3k2_yVY-qof_2SU7Ht1pIe9eK-yQULvtAIU7UGOzS4kAWeRLYieIX6yF4RxMdQZtKUVpQlIAwJvU95-WQ7EQ2PmlTJNBRJENQtTYPlimEdVx_PlaRUPoBofk0nknQS&amp;c=6p07foYyo87Wg5WtmuUZFPQAn50M0GwcbU7rl0tyZ0t0cQl4rFo2nQ==&amp;ch=BbxppLQiGACQLsmyOtd4hscSyrcA4iV_-YVcbm7Sp0sR0n67VbTxNw==\">guide<\/a>\u00a0called Supporting Individuals with Autism through Uncertain Times.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Resources for CARE Families Compiled from the ASF\u2019s Resources and the CARE Team We hope you\u2019ll find some of the resources below helpful as you navigate these very difficult times of establishing drastically different routines for your family. COVID-19 Resources for The ASD Community Coronavirus Resources: InterAgency Autism Coordinating Committee Coping with Coronavirus: National Institute [&hellip;]<\/p>\n","protected":false},"author":17538,"featured_media":0,"parent":6083,"menu_order":2,"comment_status":"closed","ping_status":"closed","template":"","meta":[],"_links":{"self":[{"href":"https:\/\/www.bu.edu\/autism\/wp-json\/wp\/v2\/pages\/6101"}],"collection":[{"href":"https:\/\/www.bu.edu\/autism\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.bu.edu\/autism\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.bu.edu\/autism\/wp-json\/wp\/v2\/users\/17538"}],"replies":[{"embeddable":true,"href":"https:\/\/www.bu.edu\/autism\/wp-json\/wp\/v2\/comments?post=6101"}],"version-history":[{"count":2,"href":"https:\/\/www.bu.edu\/autism\/wp-json\/wp\/v2\/pages\/6101\/revisions"}],"predecessor-version":[{"id":6105,"href":"https:\/\/www.bu.edu\/autism\/wp-json\/wp\/v2\/pages\/6101\/revisions\/6105"}],"up":[{"embeddable":true,"href":"https:\/\/www.bu.edu\/autism\/wp-json\/wp\/v2\/pages\/6083"}],"wp:attachment":[{"href":"https:\/\/www.bu.edu\/autism\/wp-json\/wp\/v2\/media?parent=6101"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}