Patient Contact Registry

The VCRC Patient Contact Registry is a method by which patients with vasculitis can register themselves with the VCRC in order to be contacted about clinical research opportunities and updates on the progress of the VCRC research projects.  The contact registry is anonymous and free of charge.

Any patient with vasculitis is eligible to enroll in the Contact Registry by completing a simple form that can either be submitted online or mailed.

Information contained within this registry will be used for recruitment to research studies directed at improving our knowledge and treatment of these rare diseases.  The continued efforts of researchers seek to improve the quality of life for all who are suffering from these rare diseases.  The work of the researchers cannot occur without the partnership with patients.

Several key studies have recently been conducted using the contact registry, including the VCRC Vasculitis Illness Perception (VIP) study led by Dr. Peter Grayson.  There are more than 3,000 patients from around the world currently enrolled in the Contact Registry.