Patient Advocacy Groups

Patient Advocacy Groups

Vasculitis Foundation (VF)

The Vasculitis Foundation advocates for early diagnosis, leading edge treatment, and ultimately a cure for all types of vasculitis. The VF supports and empowers patients through education, awareness and research.

http://www.vasculitisfoundation.org/

Churg-Strauss Syndrome Association (CSSA)

The CSSA is dedicated to the identification, treatment, and cure of Churg Strauss Syndrome. The CSSA is operated and supported by volunteer efforts and is made up of a network of patients, friends, and medical professionals.

http://www.cssassociation.org/

Polyarteritis Nodosa (PAN) Support Network

The Polyarteritis Nodosa Support Network consists of patients, caregivers, physicians, and research specialists, and provides invaluable education and support through a mailing list, live chat sessions, and other web resources.

http://www.pansupportnetwork.org/

National Medical Research Foundation

NMRFoundation is focused on finding a cure for PMR and GCA. Their goal is to reach those “at risk” and enlist their support in raising funds to finance medical research critical to finding the cure.

http://www.nmrfoundation.com/

Vasculitis Foundation Canada

The Vasculitis Foundation Canada is working to establish rapport with all known vasculitis patients and try to alleviate the isolation of having an uncommon, life-threatening disease. They aim to assist vasculitis patients and their families with clinical information and coping strategies, to help them develop a strong and positive outlook.

www.vasculitis.ca