LIBRE: Life Impact Burn Recovery Evaluation
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LIBRE is an innovative questionnaire for measuring a return to life after burn injury.
Attempting to return to everyday life after a burn injury can be emotionally challenging. Due to ongoing symptoms, potential physical disfigurement and the stress of coping with trauma, many burn survivors face difficulties going back to their job, relating with their family, their friends and their significant other.
The LIBRE Project is currently developing a computer-based questionnaire to assess the impact burn injury has on social functioning. The questionnaire will look beyond physical recovery to focus on social areas such as:
- Social and Community Life
- Relationships with Family and Friends
- Romantic Relationships
- Work Life
Once completed, the LIBRE Questionnaire will be a comprehensive burn recovery evaluation using an innovative test format, the computerized adaptive test (CAT). Using CAT technology, a burn survivor will receive an accurate assessment of how they are recovering across multiple domains after answering only a handful of questions.
The LIBRE Questionnaire will be used by burn survivors and clinicians to track an individual’s burn recovery, improve rehabilitation efforts, and identify areas where additional support is needed. The goal of the project is to empower burn survivors to better understand their own recovery process and provide real-time data to clinicians and researchers to improve rehabilitation.
The LIBRE Project is a collaboration between BUSPH, the Boston-Harvard Burn Injury Model System – a research partnership of Massachusetts General Hospital, Spaulding Rehabilitation Hospital and Shriners Hospital for Children – and The Phoenix Society for Burn Survivors. LIBRE is funded by the National Institute on Disability and Rehabilitation Research.