You can help doctors learn more about the impact of myelodysplastic syndrome (MDS, also sometimes called myelodysplasia) and its treatments on patients’ physical, emotional, social, and economic well-being by enrolling in a voluntary research project. The study is called Patient Registries at Slone: MDS, and is conducted by the Slone Epidemiology Center at Boston University.

The MDS Registry is especially important because it provides “real world” information about patients with MDS. Since MDS is not a very common disease, it is essential for the Registry to enroll as many patients as possible. It is also important for the Registry to include patients from all regions of the U.S. and from all walks of life. Together, you and others facing the challenges of MDS can provide valuable information that will help doctors better understand the disease and in turn, help patients with MDS now and in the future.