The New England Regional Spinal Cord Injury Center’s site-specific project “Tracking Functional...
My Care My Call
My Care My Call (MCMC) is a randomized control trial (RCT) designed to test if a peer-led empowerment training program delivered by phone over a six month period can improve access to quality primary care and preventative services for people with traumatic spinal cord injury (SCI). MCMC and Peer Health Coaches provide goal-setting support, health care self-advocacy training, information, and referrals to try to help individuals with SCI with problems they may face in finding and maintaining quality primary care, including preventive screenings and prevention of secondary conditions. Coaches offer tools to help prepare people for office visits, as well as information and encouragement to connect people to community resources, services for equipment, and other resources related to primary care. MCMC incorporates phonecalls from a peer health coach, a user-friendly Resource Guide, and recorded vignettes from peers.
The specific aims of the MCMC pilot site-specific project are:
- To design and develop the various components of the MCMC intervention, including the peer-led empowerment training approach, Resource Guide, recorded vignettes, Peer Health coach Toolkit, and the MCMC participant website.
- To conduct qualitative consumer evaluation for the purpose of refining the MCMC intervention.
- To conduct a pilot randomized controlled study (RCT) of the short-term efficacy of the MCMC intervention.
Explore Other NERSCIC Studies:
Enhancement and Evaluation of the SCI-FI Instrument
(SCI Functional Index Computer Adaptive Testing)
Missing Links: SCI-FI Lifespan
Evaluating the Sensitivity and Responsiveness of the SCI-QOL CATs
Equity and Quality in Assistive Technology for Individuals with SCI (EQuATe)
Patient Reported Outcomes Measurement Information System (PROMIS)
National Spinal Cord Injury Database