Participation and Environment Project

Thank you!
Thank you for your interest in our study. We have reached our target number of 600 completed surveys. Please go to emerging evidence to see what we have learned about the participation of children with and without disabilities in important activities in their homes, schools, and communities and how features of the environment affect their participation.


The Participation and Environment Project sought to develop and test a new measure of participation and environment for children and youth with disabilities, in the contexts of home, school, and community life. This measure, called the Participation and Environment Measure for Children and Youth (PEM-CY) is intended to support research efforts investigating environmental supports and barriers that may impact children’s participation.

Availability of valid, reliable, and relevant measures will support more effective intervention and greater services to support children’s participation in meaningful life areas. This survey can be taken in less than 20 minutes online and is designed to provide a more complete picture of the participation of children and youth. We hope that first-hand experiences of results of this survey will help guide policymaking that is responsive to the needs of children and youth with disabilities that supports their involvement in home, school, and community life to the fullest extent possible.

This project was funded by the National Institute for Disability and Rehabilitation Research (NIDRR) through the U.S. Department of Education, Award Number H133G070140.

For more information, please email us at

*For this study, we collaborated with Dr. Mary Law at CanChild Center, McMaster University, Canada and . For more information about the project at CanChild Center, please visit

*Dr. Mary Khetani was involved with this project during her time at BU and continues to conduct research on children’s participation in the environment. For more information on what she is doing at University of Illinois at Chicago, please visit