Opportunity to Participate

Computer Adaptive Testing of Adaptive Behavior in Children and  Youth with Autism Spectrum Disorder

Are you a parent or guardian of a child or teen 10-18 years old with an Autism Spectrum Disorder?

We need your help to develop a new way of assessing your child’s strengths and needs!

This study will test a revised version of a widely used measure of adaptive behavior, the PEDI, and validate the computer-based tool for use with youth with ASD. Your responses can help us create a shorter assessment individualized to each child’s strengths and needs.

We are looking for parents/guardians of children who are diagnosed with an Autism Spectrum Disorder (ASD) and are 10-18 years old. We are especially interested in hearing from parents of:

  • Teenagers with ASD, ages 13-18 years
  • Youth with ASD who use alternative methods of communication and/or are non-verbal

You will meet two times with project staff at a time and location most convenient for you, in person or on the phone. the first meeting will take about 60 minutes. Parents will complete a series of questionnaires and the computer-based PEDI adaptive behavior survey. Questions will be about your child’s past and current abilities and level of functioning. The second meeting will be scheduled 2-3 weeks later and will take about 15 minutes. Parents will complete the computer-based PEDI adaptive behavior survey only. This project involves the collection of data for a national repository. Parents who complete both meetings will receive a $25 gift certificate.

If you are interested in learning more about this project, email us at asdcat@bu.edu or call us at 617-353-7492

This study is funded by the Eunice Kennedy Shriver National Institute of Child Health & Human Development, Award number R21HD065281 to Boston University, Dr. Coster, Principal Investigator.