Opportunity to Participate
Computer Adaptive Testing of Adaptive Behavior in Children and Youth with Autism Spectrum Disorder
Are you a parent or guardian of a child or teen 10-18 years old with an Autism Spectrum Disorder?
We need your help to develop a new way of assessing your child’s strengths and needs!
This study will test a revised version of a widely used measure of adaptive behavior, the PEDI, and validate the computer-based tool for use with youth with ASD. Your responses can help us create a shorter assessment individualized to each child’s strengths and needs.
We are looking for parents/guardians of children who are diagnosed with an Autism Spectrum Disorder (ASD) and are 10-18 years old. We are especially interested in hearing from parents of:
- Teenagers with ASD, ages 13-18 years
- Youth with ASD who use alternative methods of communication and/or are non-verbal
You will meet two times with project staff at a time and location most convenient for you, in person or on the phone. the first meeting will take about 60 minutes. Parents will complete a series of questionnaires and the computer-based PEDI adaptive behavior survey. Questions will be about your child’s past and current abilities and level of functioning. The second meeting will be scheduled 2-3 weeks later and will take about 15 minutes. Parents will complete the computer-based PEDI adaptive behavior survey only. This project involves the collection of data for a national repository. Parents who complete both meetings will receive a $25 gift certificate.
If you are interested in learning more about this project, email us at firstname.lastname@example.org or call us at 617-353-7492
This study is funded by the Eunice Kennedy Shriver National Institute of Child Health & Human Development, Award number R21HD065281 to Boston University, Dr. Coster, Principal Investigator.