Patient/Advocate Engagement

Our community engagement team works to raise awareness and build capacity in the community to engage in clinical and translational research through educational outreach, research networking and the Patient Advisory Group. The CTSI provides one-on-one consultations and seminars for community members interested in partnerships in research at BMC, local CTSA hubs, or the CTSA network to conduct patient-centered or community based research and reporting research back to the community.

Educational Outreach

  • Connecting Community to Research Training: a 2-hour interactive training session to highlight how advocates and researchers can work together using research to address a community health concern and provide opportunities for community members to meaningfully engage in research. Our team is available to deliver CCR trainings to interested groups in the New England area. For groups outside of our area, our Connecting Community to Research training toolkit is available online by filling out a short survey. For more information, please email¬†ccr@bmc.org.
  • In collaboration with Tufts University and the Harvard Catalyst, the CTSI has helped develop a series of educational pamphlets that provide detailed and easily understood information about participation in research studies.

Research Networking

  • Boston Breast Cancer Equity Coalition:¬†a diverse group of multidisciplinary stakeholders whose members include oncology and primary-care clinicians, patient navigators, public health policy-makers; advocates, researchers and patients from the American Cancer Society, the Massachusetts¬†Department of Public Health and multiple institutions in Boston where breast cancer patients receive their care. The vision of the coalition is to eliminate the differences in breast cancer care and outcomes by promoting equity and excellence in care among all women of different racial/ethnic groups in the City of Boston. The coalition strives to reach this vision by identifying, developing, and implementing solutions with the specific initial goal of eliminating the inequities in breast outcomes and care that exist among Black, non-Hispanic women in Boston.
  • Community IRB members. The BU/BMC Institutional Review Board (IRB) is a committee of scientists/doctors and non-scientists who review all proposed research involving human subjects to protect the rights and welfare (including privacy/confidentiality rights) of the research participants. Community members serve an important role on the IRB and BU is currently making changes to increase the number of community members on the IRB.

Patient Advisory Group

The Patient Advisory Group is composed of BMC patients who provide feedback on community outreach efforts to raise awareness about research and benefits to the community. The group meets every other month to receive training in research methods and provide consultation to researchers, taking an active role in study design, implementation, and dissemination of research findings.