ACT Now: November/December 2018 ACT Network Update
About the ACT Network
- 32 sites connected to the ACT Network.
- 16 sites staging for connection to ACT.
- 100 million estimated total patients represented in first 32 ACT sites.
|Connected to ACT:||Connected to ACT:||Staging for ACT:|
Emory Univ./Morehouse Univ.
Johns Hopkins University
Medical Univ. of South Carolina
New York University
Oregon Health & Science Univ.*
Univ. of Alabama at Birmingham*
Univ. of Ark. for Medical Sciences*
|University of California, Davis*
University of California, Irvine*
University of California, Los Angeles
University of California, San Diego
University of California, San Francisco
U of Cincinnati/Cincinnati Children’s
U of Colo/Children’s Hosp. Colorado*
University of Florida*
University of Kentucky
University of Minnesota
University of Pittsburgh*
UT Health San Antonio
Vanderbilt University Medical Center
Washington Univ. in St. Louis*
|Medical College of Wisc.
Ohio State University
University at Buffalo*
University of Illinois-Chicago
University of Kansas*
Univ. of Massachusetts
University of Miami
University of New Mexico
Univ. of Southern California
University of Utah
University of Washington*
U of Wisconsin-Madison*
Weill Cornell Medicine
*sites currently represented in ACT workgroups
ACT Workgroup Updates
With the majority of production sites now fully functional on SHRINE 1.25.4, the technology work group is focusing on rollout education and strategies for the i2b2 plugin technology that will assist in participant re-identification inn 2019.
The next version of the ACT ontology, v2.0, is currently in the ACT test network. A production rollout is expected in early 2019. More information will follow in the next newsletter and through the technology email listserv.
Final revisions to the governance document are nearing completion, and include updated ACT functions, network operations, and considerations for the i2b2 plugins for participant re-identification. Additionally, the work group is focusing on appropriate guidance and paths forward for possible end user access by affiliate institutions.
The Evaluation team has begun qualitative interviews with data stewards and end users at active ACT sites to learn more about local experiences and identify opportunities for improving ACT. The Dissemination team is continuing to support sites from waves 1, 2 and 3 as they launch ACT to local end users.