Resources

For information on the protection of research participants consult the Alliance for Human Research Protection at www.ahrp.org/about/about.php. The Alliance has volumes of information and recommendations for research participants and those who conduct the studies. Veterans may wish to contact the U.S. Department of Veterans Affairs for information and brochures on volunteering in research.
http://www.research.va.gov/programs/pride/veterans/tri-fold.pdf

ACT (Assertive Community Treatment) Center of Indiana
Technical Assistance Center in collaboration with the Department of Psychology at Indiana University, Purdue University Indianapolis and the Adult and Child Center of Indianapolis. Includes research on ACT.
http://www.psych.iupui.edu/ACTCenter/

Center for Mental Health Services Research, University of Ma. Medical School, Worcester, MA
Conducts research on the nature, structure, effectiveness and regulation of services for individuals with mental health conditions; develops and disseminates knowledge to improve the lives of these individuals, their families and other community members.
http://www.umassmed.edu/cmhsr/

Center for Psychiatric Rehabilitation at Boston University, which has been involved in numerous studies on rehabilitation, recovery, peer support, and related issues. Sally Rogers, ScD., Director of Research, (email address: erogers@bu.edu) and Judi Chamberlin, international trainer, author, and consumer/advocate, are two of the key contacts. The center welcomes consumers and survivors who would like to inquire about research that has been completed or research that is ongoing now.
www.bu.edu/cpr/research/index.html

Those who are interested in finding out more about clinical research on various treatments may contact the Center for Information and Study on Clinical Research Participation. It is a non-profit agency whose mission is to:

a) Educate, inform and empower patients, the public, medical and research professionals, the media and policymakers about clinical research participation and what it means to be an active participant in the process;
b) Promote greater awareness and understanding of clinical research participation and the role that it plays in public health; and
c) facilitate more effective collaboration among all members of the clinical research enterprise.
To obtain a brochure about participation in clinical research contact rachelstanley@ciscrp.org.
http://www.ciscrp.org.

Dartmouth Psychiatric Research Center, Dartmouth University, Lebanon and Concord, NH
Emphasis on evidence-based practices on Assertive Community Treatment; Family Psycho-education; Illness Management and Recovery; Integrated Dual Disorders; Medication Management; Supported Employment
http://dms.dartmouth.edu/prc/evidence/practices/

Evaluation Center at Human Services Research Institute, Cambridge, MA
Produces briefings, reviews new instruments, methods and software for the purpose of helping mental health stakeholders to improve planning and implementing services.
http://www.tecathsri.org/

Georgetown University Center for Child and Human Development, Georgetown University and Georgetown University Medical Center, Washington, DC
Provides a research base to generate new knowledge about child and human development (including children with psychiatric disabilities), links research to practice and policy in real world settings, builds networks of research collaborations.
http://gucchd.georgetown.edu/topics/research_evaluation/index.html

McLean Hospital, Belmont, MA
McLean's nationally prominent Harvard affiliated research program is devoted to clarifying the roots, diagnosis and treatment of psychiatric illnesses. McLean Hospital has some unique research focusing on the study of the brain.
http://www.mclean.harvard.edu/research/

Those who wish to find out more about research relevant to mental health consumer/survivors or how to become involved may contact the Missouri Institute of Mental Health, University of Missouri School of Medicine. Academic consumer researcher, Jean Campbell, Ph.D. has devoted many years to the development of a strong and informed consumer/survivor voice in all aspects of mental health policy, research, and services.
Dr. Campbell can be reached at Jean.Campbell@mimh.edu.
See webpage at: www.mimh.edu/FacultyStaff/tabid/114/tabid/134/Default.aspx
The Missouri Program has been a clearinghouse for consumer-directed research and evaluation and can help with research terms, how to conduct culturally competent research, training for interviewers, a guide for consumer satisfaction studies and information on state of the art research efforts in peer support services, measurement of outcomes, and many other related issues.
http://www.cstprogram.org

There are “sister programs” at:

• the University of Illinois-Chicago--studying Peer Support Outcomes
• the University of Pennsylvania--studying core competencies of consumer-operated services (Campbell & Leaver, p. 33-34).

NARSAD: The Mental Health Research Association, Great Neck, NY
National organization dedicated to supporting innovative scientific research to find the causes, better treatments and cures for severe mental illnesses.
http://www.narsad.org/

Nathan S. Kline Institute for Psychiatric Research, New York State Office of Mental Health, Orangeburg, NY
Clinical research programs.
http://www.rfmh.org/nki/index.cfm

National Center for American Indian and Alaska Native Mental Health Research University of Colorado at Denver and the Health Sciences Center.
Focuses specifically on the mental health issues of American Indian and Alaskan native populations.
http://www.uchsc.edu/ai/ncaianmhr/research_projects.htm

National Research and Training Center on Psychiatric Disability; University of Illinois at Chicago, Department of Psychiatry.
Promotes access to effective consumer-driven and community-based services for adults with serious mental illness. Strives to enhance the use of evidence-based practice in mental health and rehabilitation.
http://www.cmhsrp.uic.edu/nrtc/default.asp

Rehabilitation Research and Training Center on Workplace Supports, Virginia Commonwealth University.
Studies issues impacting workplace supports and job retention.
http://www.worksupport.com/research/index.cfm

Research and Training Center for Children’s Mental Health, Department of Child and Family Studies, Luis de la Parte Florida Mental Health Institute, University of South Florida. (Tampa)
Addresses the need for improved services and outcomes for children with serious emotional/behavioral disabilities and their families.
http://rtckids.fmhi.usf.edu/

Research and Training Center on Family Support and Children’s Mental Health, Portland State University.
Dedicated to promoting effective services for families and their children with emotional, behavioral or mental health disorders.
http://www.rtc.pdx.edu/

Research studies @ New York Psychiatric Institute at Columbia University
Research to understand and treat psychiatric illnesses including studies of biological, environmental, physical/body factors with an emphasis on normal functioning in children and adults.
http://nyspi.org/Kolb/researchstudylist.htm

The Social Care Institute for Excellence, provides this Research Mindedness Virtual Learning Resource, a Glossary of research terms. http://www.resmind.swap.ac.uk/content/00_other/glossary.htm

University of Maryland, School of Medicine, Department of Psychiatry: Division of Services Research
Mental health services research designed to improve the quality of care.
http://www.medschool.umaryland.edu/psychiatry/services%5Fresearch/

University of Maryland, Maryland Psychiatric Research Center addressing treatment of schizophrenia
http://www.mprc.umaryland.edu/

UPenn Collaborative on Community Integration; RRTC on Community Integration of Individuals with Psychiatric Disabilities
Undertakes research initiatives for the promotion of community integration.
http://www.upennrrtc.org/research/index.html

Examples of Research Journals

International Journal of Psychosocial Rehabilitation
http://www.psychosocial.com/

Psychiatric Rehabilitation Journal
http://www.bu.edu/cpr/prj/index.html

Schizophrenia Bulletin
http://schizophreniabulletin.oxfordjournals.org