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Research Issues for Mental Health Consumers/Survivors

Reference List

Alliance for human research protection. Retrieved April 13, 2006, from http://www.ahrp.org

Bluebird, G. (n.d.). Participatory dialogues: A guide to organizing interactive discussions on mental health issues among consumers, providers, and family members. Substance Abuse and Mental Health Services Administration, Center for Mental Health Services, National Mental Health Information. Retrieved February 20, 2006, from http://www.mentalhealth.samhsa.gov/publications/allpubs/SMA00-3472

Campbell, J. (n.d.). Mental health consumer concerns regarding the use of their clinical and administrative health data: Privacy, confidentiality, access and informed consent, an address to the Committee of Vital and Health Statistics. Retrieved February 10, 2006, from http://www.ncvhs.hhs.gov/970604tb.htm

Campbell, J. & Leaver, J. (2003, March). Emerging new practices in organized peer support. National Technical Assistance Center for State Mental Health Programs, National Association of State Mental Health Program Directors.

Campbell, J., Ralph, R., & Glover, R. (1993). From lab rat to researcher: The history,models, and policy implications of consumer/survivor involvement in research. Proceedings on State MH Agency Services Research and Program Evaluation. Alexandria, VA: NASMHPD Research Institute.

Campbell-Orde, T., Chamberlin, J., Carpenter, J., & Leff, S. H. (2005). Measuring the promise: A compendium of recovery measures, Vol. II . Cambridge, MA: The Evaluation Center at Human Services Research Institute. Retrieved February 21, 2006, from http://www.tecathsri.org/product_description.asp?pid=129
Add electronic version to cart, then hit checkout, hit login, hit continue, follow steps 1-3.

Concept mapping. (n.d.). Retrieved February 8, 2006, from http://www.graphic.org/concept.html

Consumer Operated Service Program (COSP). (2002, December). A multi-site research initiative. Recovery & Rehabilitation, 2. Retrieved February 26, 2006, from http://www.bu.edu/cpr/rr/cosp/rr-cosp.html

Consumer/survivor research and policy workgroup. Report for the Center for Mental Health Services; Consumer/survivor research and policy workgroup. (July 1995), from http://www.mentalhealth.samhsa.gov/publications/allpubs/Dscsd31/default.asp

Crossing the mental health care quality chasm in Massachusetts. (2004). CQI Quality Management White Paper, 1.

Deegan, P. (2005). Current Projects. Retrieved February 20, 2006, from http://www.patdeegan.com/cp_research.html

Deegan, P. (2005). The importance of personal medicine: A qualitative study of resilience in people with psychiatric disabilities. Scandinavian Journal of Public Health, 33, 29-35.

Deegan, P. (2005). Research. Retrieved February 20, 2006, from http://www.patdeegan.com/services_research.html.

Deegan, P. (March 9, 2006). Personal interview. Boston, MA.

Delman, J. (Feb. 21, 2006). Personal Interview. Boston, MA.

Griffiths, K.M., Christensen, H., Barney, L., Jenkins, A., Kelly, C., & Pullen, K. (2004). Promoting consumer participation in mental health research: A national workshop. Centre for Mental Health Research: Australian National University.

Griffiths, K., Jorm, A., & Christensen, H. (2004). Academic consumer researchers: A bridge between consumers and researchers. Australian and New Zealand Journal of Psychiatry, 38.

Harding, C. (2005). Changes in schizophrenia across time: Paradoxes, patterns, and predictors. In L. Davidson, C. Harding, & L. Spaniol (Eds.), Recovery from severe mental illness: Research evidence and implications for practice, 1, 27-57. Boston: Boston University.

Hodges, J.Q. Inclusion of mental health consumers on research teams. (n.d.). Retrieved March 8. 2006, from http://ps.psychiatryonline.org/cgi/content/full/56/9/1158

Isaac, S. & Michael, W.B. (1990). Handbook in research and evaluation for education and behavioral sciences (2 nd ed.). San Diego: Edits.

Kaufmann, C. & Campbell, J. (1994). Voice in the mental health consumer movement: An examination of services research by and for consumers. St. Louis, Missouri: Missouri Mental Health Institute.

Lemmens, T., & Miller, P. B. (2000, June). Balancing ethical issues in psychiatry. Psychiatric Times, XVII. Retrieved January 31, 2006, from http://www.psychiatrictimes.com/p000663.html

Logic model. (n.d.). Retrieved February 28, 2006 from http://www.uwex.edu/ces/pdande/evaluation/evallogicmodel.html

MacCoun, R. J. (1998). Biases in the interpretation and use of research results. AnnualReviewof Psychology, 49, 259-287. Retrieved March 8, 2006, from
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McLean, A. (July 2003-June 2004). “Recovering” consumers and a broken mentalhealth system in the United States: Ongoing challenges for consumers/survivors and the new freedom commission on mental health, part I. Legitimization of the consumer movement and obstacles to it. International Journal of PsychosocialRehabilitation, 8, 47-57.

Michels, R., M.D. (1999). Are research ethics bad for our mental health? The NewEngland Journal of Medicine, 340.

Myers, D.G. (2001). Psychology (6th ed.). New York, NY: Worth Publishers.

Myers, M.D. (n.d.). Qualitative research in information systems. Retrievedfrom Association for Information Systems Website: http://www.qual.auckland.ac.nz/

National Association of State Mental Health Program Directors. (NASMHPD). (Dec. 1989). Position statement on consumer contributions to mental health service delivery systems. Retrieved February 2, 2006, from NASMHPD Website: http://www.nasmhpd.org/general_files/position_statement/contribps.htm

National Bioethics Advisory Commission. (1999). Ethics report recommends restrictions on research with people with impaired decision-making ability. APA Monitor Online, 30, Retrieved February 10, 2006, from http://www.apa.org/monitor/jan99/impair.html

National Center for the Dissemination of Disability Research. (2006). NIDRR Project Number: H133A990008.

National Health and Medical Research Council, Australian Govt. (2005). Psychiatric Research, Human Research Ethics Handbook.

Peterson, D. (1999). Encouraging ethical and non –discriminatory research with mental health consumers: A discussion paper. Wellington, New Zealand: Mental Health Commission Occasional Publications.

Ralph, R., Kidder, K., Phillips, D., Silve, J., and Rode, R. (2000). Can we measure recovery? A compendium of recovery and recovery-related instruments. Volume I, Section VIII. Appendix A.: Notes for non researchers. Cambridge, MA: The Evaluation Center, Human Services Research Institute, and the Edmund Muskie School of Public Health, University of Southern Maine, 2000. Retrieved February 22, 2006, from http://www.tecathsri.org/pub_pickup/pn/pn-43.pdf

Ridgway, P. (2001). Re-storying psychiatric disability: Learning from first person recovery narratives. Psychiatric Rehabilitation Journal, 24, 335-343.

Robinson, P. (April 4, 2006). Personal interview. Doctoral Candidate, Memorial University, St. John’s, Newfoundland, Canada, Florida Mental Health Institute, University of South Florida.

Satcher, D. (n.d.). Mental health: A report of the surgeon general. Retrieved February 20, 2006, from http://www.surgeongeneral.gov/library/mentalhealth/chapter7/sec2.html

Shapiro, H., Ph.D, et al. (2001). Protecting research participants – A time for change. Ethical and Policy Issues in Research Involving Human Participants, Summary. Bethesda, Maryland: National Bioethics Advisory Commission.

Strauss, J. (2005). What is the reality about severe mental disorder? In L. Davidson, C. Harding, & L. Spaniol (Eds.), Recovery from severe mental illness: Research evidence and implications for practice, 1, 27-57. Boston: Boston University.

Taylor-Powell, E., Ph.D. (2005). University of Wisconsin-extension-cooperative extension, logic models: A framework of program planning and evaluation. Nutrition, Food Safety, and Health Conference. Baltimore. Retrieved from
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Transformation institute in consumer studies: An introduction to evaluation methods and use. (2005). Participant Materials, Section 2.

University of South Florida, Ethics in Research. (n.d.). An interactive training course. Retrieved January 30, 2006, from http://www.fmhi.usf.edu/mhlp/training/ethics/background.htm

Wang, C. Method/ Goals. (n.d.). Retrieved February 21, 2006, from http://www.photovoice.com/method/index_con.html

Western Institutional Review Board. (n.d.). Retrieved March 31, 2006, from http://www.wirb.com/shell.php?content=content/research_subjects

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