Confidentiality

As soon as the questionnaires are received at our office, the sheet with personal information is detached from the rest of the questionnaire and stored separately.  Published information provides group statistics only and never individual information.  Furthermore, by law, the Black Women’s Health Study is prohibited from providing participant information to outside sources.

Any contact with friends or relatives whose names have been provided by participants is solely for the purpose of locating the participant in the event that she cannot be reached by mail or by phone.  No personal study information about the participant will be disclosed to friends or relatives.