• Joel Brown

    Staff Writer

    Joel Brown

    Joel Brown is a staff writer at BU Today and Bostonia magazine. He’s written more than 700 stories for the Boston Globe and has also written for the Boston Herald and the Greenfield Recorder. Profile

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There are 13 comments on Lyme Disease Set Her Back. And Pushed Her Forward.

  1. Joel,
    Nice piece on Hannah. Thank you for representing the story so well. So proud of this girl and what she’s accomplishing. She is a wonderful representation of SHA. Getting this story out on her means a great day – thank you!

  2. Thank you for this inspiring piece about an inspiring young woman fighting back against challenging odds. Lyme and other chronic illnesses are so often misdiagnosed and mismanaged, making recovery and living a full life even more difficult. I applaud Hannah for her courage and determination.

    1. It sure is! And don’t forget, you need to test for the coinfections too — Bartonella, Babesia, Anaplasma, Erlichiosis and even RMSF… all could possibly be causing insomnia.

    1. Absolutely agree. The quote from the CDC that nearly HALF the US population has a chronic illness and nearly 300 of them all point back to Lyme disease which happens to also be a bioweapon should be particularly disturbing to everyone on the planet. Doctors know nothing about it (except a handful). Patients have to crowd-source their health on the internet. It’s absolute insanity. This article is wonderful and Hannah is brilliant for putting this out there. Go Hannah!

  3. How fantastic. I was diagnosed with Chronic Lyme in 1995 and may have had it while at B.U. (SMG ‘86). I actually did a class project at B.U. on a group that helped the elderly get work. Your story is inspiring and you have the potential to help so many! My best to you, the individuals you will help find work for, and the companies that will benefit from passionate, driven, and valuable minds.

  4. This is awesome. I have contemplated this exact idea many a time so glad to see someone bring it to fruition. This is the morale and intellectual boost so many need. <3

  5. My husband went misdiagnosed for a long time until he was given the Western blot and ELISA test in 2014. Antibiotics just made the spirochetes go into hiding. Prednisone allowed him to function, but lots of side effects. Building up his immune system and taking CBD is what finally gave him his life back. We researched CBD for months. Found ethical people who were making it for all the right reasons. Since, he has founded Calyx-Collective in Newton, MA, where we’ve brought together the highest quality of CBD products we could find, to help others deal with Lyme and other chronic symptoms. If you have any questions about it, he’d love to talk.

  6. I have the HLAb27 “factor”. My immune system goes into hyper-drive when it sees an infection. Consequently, I am taking two chemo drugs: MTX & Remicade. Tests for Lyme have been negative so far but I do have a dog that I have to check daily.
    Debbie Peck says that her husband had to build up his immune system. I believe that would be bad for me. As it is, I can’t swim in most bodies of water (e.g. Lake Winnipesaukee) without getting infections (feet and nose).
    I have considered marijuana for pain but my rheumie says not enough research has checked its effects with the other drugs I take. Maybe CBD might be different for the pain?
    Has anyone experienced real difficulty in getting a good night’s sleep?

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