Here are some resources we recommend, in the Boston area and beyond:


Boston Area Support Groups and Resources:

Aphasia Community Group at Boston University’s Sargent College


Aphasia Resource Center

Boston University, Sargent College

635 Commonwealth Avenue

Boston, MA 02115

Jerome Kaplan



American Stroke Association

The Schwartz Center for Compassionate Health, our funder for this project and a big supporter of our work,promotes compassionate healthcare so that patients and their professional caregivers relate to one another in a way that provides hope to the patient, support to caregivers and sustenance to the healing process.

This is the website for a UK aphasia charity, North East Aphasia Trust.  There is a lot of helpful information and personal stories from people with aphasia on the site.



Additional References

Hallé MC, Duhamel F, Le Dorze G. The daughter-mother relationship in the presence of aphasia: how daughters view changes over the first year poststroke. Qual Health Res. 2011 Apr;21(4):549-62. Epub 2010 Dec 1. PubMed PMID: 21123623.


Gracey F, Palmer S, Rous B, Psaila K, Shaw K, O’Dell J, Cope J, Mohamed S. “Feeling part of things”: Personal construction of self after brain injury. Neuropsychological Rehabilitation. 2008; 18(5/6): 627-650


Eriksson M, Svedlund M. ‘The intruder’: spouses’ narratives about life with a chronically ill partner. J Clinical Nursing. 2006 Mar; 15(3): 324-333.


Ellis-Hill CS, Horn S. Change in identity and self-concept: a new theoretical approach to recovery following a stroke. Clinical Rehabilitation. 2000 June; 14(3): 279-287


Brown D, Lyons E, Rose D. Recovering from brain injury: Finding the missing bits of the puzzle. Brain Injury. 2006 August; 20(9): 937-946.


Cameron J, Cheung A, Streiner D, Coyte P, Steward D. Stroke Survivor Depressive Symptoms Are Associated With Family Caregiver Depression During the First 2 Years Poststroke. Clinical Sciences. 2011 February: 302-306.


Muenchberger H, Kendall E, Neal R. Identity transition following traumatic brain injury: A dynamic process of contraction, expansion and tentative balance. Brain Injury. 2008 November; 22(12): 979-992.


Thomas S, Lincoln N. Predictors of Emotional Distress After Stroke. Stroke. 2008; 39: 1240-1245.