Resources
Join the On-Line Amyloid Mailing List
This is an unmediated discussion list for patients, family, friends, researchers, and physicians, to discuss clinical and non-clinical issues and advances pertaining to the treatment of amyloidosis. Topics of discussion include patient experiences, psychosocial issues, new research, clinical trials, and discussions of current treatment practices and alternatives. The principal focus is expected to be information and reassurance for patients and loved ones.
Amyloidosis Research Foundation
The Amyloidosis Research Foundation links those affected by amyloidosis to experienced medical and emotional support resources and promotes awareness among the public and professionals so that the disease can be recognized earlier and appropriately treated.
Amyloidosis Support Group
ASG is a non-profit organization that leads support meetings for patients and families in many cities in the United States and some other countries
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