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HOPE Participants Provide FeedbackThe Boston University Alzheimer’s Disease Center (BU ADC) Education & Information Transfer Core (EITC) developed two exciting projects this summer to gain important feedback from HOPE participants, including a Participant Satisfaction Survey and Focus Groups. The survey provided information about participants' perceptions of the HOPE study and their reasons for participating or not participating in other BU ADC studies. This information will help BU ADC faculty and staff improve participant experiences and contribute to higher rates of study participation and participant satisfaction. The BU ADC is extremely grateful to the 250 HOPE participants who have returned their surveys, and the Center hopes that more participants will continue to do so. If you are a HOPE participant or study partner and have not completed a survey, please contact Ms. Kristen Huber, EITC Coordinator, at 617-414-1193 or khuber22@bu.edu. In addition to the survey, the EITC completed three focus groups related to Black elders' perceptions of brain donation. Through information provided by 15 Black and African American HOPE participants, the BU ADC will enhance the Center’s educational practices about the process and benefits of brain donation. Based on suggestions from the focus group members, the BU ADC has recently appointed Ms. Elana Cook (617-414-1192 or ecook@bu.edu) as the African American brain donation contact. The Center is now developing a brain donation brochure specifically for Black elders and thanks all of the focus group participants for offering their valuable time and insight. |
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