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The following organizations and websites are devoted to providing information and resources for families and caregivers of people with dementia. Click on their website links for more details.
Driving and Dementia
The BU ADC, in collaboration with the MIT AgeLab, and The Hartford Financial Services Group, Inc., has released information for caregivers to assist in the driving decision. Click here to learn more and download helpful materials.
Local and National Organizations
Alzheimer's Association (Massachusetts Chapter)
The MA state chapter of the national Alzheimer's Association provides a wealth of education and support resources for caregivers, including a 24-hour Help Line, free educational series, an extensive library of caregiver guidebooks, and numerous support groups throughout the state.
311 Arsenal Street
Watertown , MA 02472
Tel: (617) 868-6718
Toll-free: (800) 548-2111
Alzheimer's Association (National Headquarters)
The Alzheimer’s Association, the world leader in Alzheimer research and support, is the first and largest voluntary health organization dedicated to finding prevention methods, treatments and an eventual cure for Alzheimer’s. For 25 years, the donor-supported, not-for-profit Alzheimer’s Association has provided reliable information and care consultation; created supportive services for families; increased funding for dementia research; and influenced public policy changes.
Call toll-free: (800) 272-3900
NIA Alzheimer's Disease Education & Referral Center
The U.S. Congress created the Alzheimer's Disease Education and Referral (ADEAR) Center in 1990 to "compile, archive, and disseminate information concerning Alzheimer's disease" for health professionals, people with AD and their families, and the public. The ADEAR Center is operated as a service of the National Institute on Aging (NIA), one of the Federal Government's National Institutes of Health and part of the U.S. Department of Health and Human Services. The NIA conducts and supports research about health issues for older people, and is the primary Federal agency for Alzheimer's disease research.
As a public, U.S. Government-funded resource, the ADEAR Center strives to be a current, comprehensive, unbiased source of information about AD. All our information and materials about the search for causes, treatment, cures, and better diagnostic tools are carefully researched and thoroughly reviewed by NIA scientists and health communicators for accuracy and integrity.
Toll-free: (800) 438-4380
Alzheimer's Disease International
Alzheimer's Disease International (ADI) is the umbrella organization of Alzheimer associations around the world. We aim to help establish and strengthen Alzheimer associations throughout the world, and to raise global awareness about Alzheimer's disease and all other causes of dementia.
Alzheimer Research Forum
This on-line forum for Alzheimer's researchers is open to the public and provides news and information about the very latest research in the field.
Family Caregiver Alliance
This national organization is devoted to serving as a public voice for caregivers. Its pioneering programs--information, education, services, research, and advocacy--support and sustain the important work of families nationwide caring for loved ones with chronic, disabling health conditions.
Lewy Body Dementia Association
The Lewy Body Dementia Association (LBDA) was established to provide comprehensive scientific, clinical and caregiver information on Lewy body dementias (LBD) also commonly referred to as dementia with Lewy bodies (DLB). The LBDA provides important information on LBD, publications for patients and caregivers, and other outside resources that are related to LBD.
Outreach services include caregiver helplines (phone and e-mail), a quarterly newsletter, brochures, and support groups.
The Association for Frontotemporal Dementias
The Association for Frontotemporal Dementias (AFTD) is a nationwide non-profit organization whose mission is to promote and fund research into finding the cause and cure for the frontotemporal dementias; to provide information, education, and support to persons diagnosed with frontotemporal dementias (FTD) and their families and caregivers; and to educate physicians and allied health professionals about FTD.
Eldercare Expert Sites
Caring and Connecting Webpage
Boston University gerontologist Dr. Lauren Storck leads this on-line information and support resource for caregivers.
How to Survive Caring for Aging Parents
Nationally recognized eldercare expert Jacqueline Marcell provides her guide on caring for aging parents. She also has her own Coping With Caregiving Radio Program that airs every Saturday at noon.
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